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Where to help

Caregivers: Dementia | Last Active: Sep 7 8:49pm | Replies (26)

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You've figured out how to keep active; I feel like it's just my husband and I but we had a crisis in our house from the AC, had to move out, had to move everythign out, and we're in a rental. All while I'm trying to deal with his first infusion tomorrow. His one son is in denial I think, all the kids live a distance. It's a second marriage so you have the ups and down of a joined family. Our grandkids are so far away. We were supposed to go to Canada to see the one grandson icehockey. He's a goalie, but I had to cancel because of the infusion and whatever side effects tomorrow. I was afraid to fly with all going on. So for now, we're not doing Canada. My husband started Cerefolin, a brain supplment. I'll have to look at CLint Steele. the eating clean food is key, I believe in that too. I notice my husband's appetite isn't the same; that worries me. Everything worries me right now, It's just the fear of the unknown I think and feeling like we're gambling against time. THanks for your post. Quite helpful.

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Replies to "You've figured out how to keep active; I feel like it's just my husband and I..."

Oh hi there, 4 years ago we had a similar experience where we lost our home of 23 years to fire. This was devastating to us and I feel that this loss may have sped up his MCI. He has been neurologically tested by the psych neuro. Recommended he go on Aricepr but he won’t.

We have 2 kids nearby (also second marriage) however all the children notice the short term memory because they speak on the phone with him often.

I am his wife, and as you know, the person who lives with the person who has MCI, knows best and notices much more than those who don’t visit. 3 children live out of state, 1 is AZ, 2 is S Florida and 3 is Boston. We are a blended family. The best advice I can give you is to try to keep things at home as normal and consistent as possible - they need this. Try making or serving his favorite foods. And yours too 😂💖

As for you, write down some of your passions or favorite things you love to do and get started as soon as you can (for your own sanity). See if there is a Medicare therapist you can talk to twice a month as talk therapy. Go to Psychology Today.org Do your best to do some things together such as a walk, a scrabble game, a movie, even a game of cards. Take care of your health as you are the caregiver. Definitely get on social media to see Dr. Clint Steele - he gives dimentia and Alzheimer’s tips several times a day. I wish you good luck. Stay in this group. 😘