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Meningioma: Anyone else? I'm frightened

Brain Tumor | Last Active: 9 minutes ago | Replies (513)

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Background: Had meningeal tumor removed 3 1/2 years ago after silent stroke. My son took me to my primary care doctor well before that point. Doctor gave me three of those tests (that Trump passes easily) and told my son that I was “just getting older.” After my son consulted with my siblings, there was discussion of putting me into a senior facility. Luckily (!?) I had the seizure at that point, had the surgery, and within two days I was back to normal. BUT, I’m still taking generic Keppra XR (750mg 4 times daily) and Vimpat (50mg 2 times daily.) Is this a normal amount? Even after 3 1/2 years, I am still too dizzy to do much walking at all. Dizziness is a byproduct of Keppra. Anyone have a suggestion on how to approach my Neurologist on this?

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Replies to "Background: Had meningeal tumor removed 3 1/2 years ago after silent stroke. My son took me..."

I agree with kdog-that sounds like a lot of Keppra. I was only on Keppra for a short time,
( 4 weeks) after my craniotomy to remove a meningioma. I would get a second opinion from the neurosurgeon who performed the surgery, or any neurosurgeon, as per your last sentence it seems you are consulting with a neurologist on this.

Yes, it seems like a pretty high dose to me. Is it working? Are your seizures controlled? Was the dosage raised gradually to control the seizures?

I’m taking Keppra XR 750 mg 2x a day. And no noticeable dizziness or seizures. After the first seizure after surgery, I started with 250 mg 2x a day of regular Keppra and the seizures still happened but as the dosage was slowly raised the individual seizures became less noticeable. The first seizure generalized and I woke up on the floor; the so far last one, only the left side of my tongue twitched. (Really weird, I can’t consciously vibrate just the left side of my tongue.)

Best wishes in finding the best combination of medicines for you.