I would say it's extremely important to meet with a doctor that specializes in Osteoporosis. My mom had osteoporosis early and eventually broke 16+ bones and lost four inches of height. I wanted to avoid that fate as did my sister. We have always eaten well, made certain we had enough calcium and D, excersized including weight bearing daily, etc, etc. Had my first DEXA at 51 and my spinal T score average was -3.7 with my lowest 2 lumbars -4. Obviously, not taking medication wasn't an option. I made an appointment with a specialist, but it was several months out. In the meantime I was able to consult with a PhD who oversees many of the osteoporosis drug trails to discuss the different options, outcomes, order the drugs are taken, etc, etc. Eventually I got into the osteoporosis specialist doc. He did note that genetics can be a bitch. After much testing to rule out any other causes, checking my kidneys, etc, etc we discussed options. Eventually decided on going onto an anabolic bone building medication to help "build up my bones" before I would switch to more of a maintenance drug such as a bisphosphonate. I used Tymlos for two years (daily injection, it's very simply like an insulin pen). I had a 16% BMD increase in the first year and about 4% in the second year. I then had an annual Reclast infusion to "lock in the gains". I will have two more annual infusions and then go off drugs for a few years since Reclast remains in the system for several years. Once it starts to decline (will have bone marker testing done to determine when that is occurring), we will discuss next steps in the process. Osteoporosis is a long term condition and the order you take the drugs and for how long is extremely important (an anabolic isn't as effective if a bisphosphonate is taken beforehand, for example). Most of the osteoporosis drugs have a limit to how long they are recommended to take, so planning ahead with someone who specializes is important. I was terrified to start the drugs after reading the forums, but I'm glad I did as not doing so would mean a certain future of broken bones. My mom has now been on Prolia for 7 years and is back to dancing and living life in her 80's. My sister started on bisphosphonates in her 40's so she was able to stop her loss before it was as severe. She's now on a "drug holiday" and will resume when her markers indicate it's time (likely 3-5 years). I would note when I recently had shoulder surgery the surgeon noted "why not just do weight bearing exercises" when I mentioned I had osteoporosis, not helpful. Again, I had exercised daily, wear a weighted vest, had always done weight bearing exercises as recommended to prevent bone loss, practice martial arts, ski, hike regularly, etc, etc. Sometimes medications are needed or you just continue to lose bone density. Had I caught mine earlier, HRT might have slowed my loss, but I didn't, so here I am now treating it as best I can. Unfortunately, my doc is now retiring so I am in search of another specialist in the Seattle area (which isn't easy to find, but worth waiting for). Luckily I already know the plan for the next several years. Many of the drugs available today didn't exist 20 years ago, so at least we have so many more options now with more on the horizon. Good luck with your journey. Ask a lot of questions when you meet with them.
Hi!
This was so wonderful to hear!
I am 59 years old, would consider myself extremely healthy. I eat right, my BMI is 20.2 and I’m not on any Maintenance drugs for anything. My heart is good, I’ve never had any problems.
I had dental implants put in in July and my oral surgeon said that my bones were soft and recommended that I get a bone density test.
I had to argue with my MD because she determined that I was too young to have a DEXA exam, but I pushed and she did.
My scores -2.8 all the way through. Due to the fact that I just had dental implants, I could not be on any other medication’s because that could have caused osteonecrosis or Jaw Death.
I was scared. So I went to a specialist who ran a lot of tests and determined that Tymlos was the answer for me.
I have a lot of years left, and I can’t imagine going through them with fractures more and more every year.
I will take whatever irritating side effects that go with us I guess for this reason.
I came here to see how other people feel about this drug and I really appreciate your story. Thank you!