Chronic lower back pain & Radiculopathy 21 yrs old

Posted by ellakaluzinski04 @ellakaluzinski04, Sep 3 1:00pm

Hi everyone, I’m 21 and I’ve been struggling with disabling back and leg pain. I first noticed symptoms around 16 years old and had got progressively worse as I have aged, Jumping from doctor to doctor I have found a doctor that has finally listened to me and taken my pain seriously and has investigated further. . I wanted to share my situation to see if anyone here has gone through something similar and if anyone could give me any tips as my doctor said this is going to be around for the rest of my life and i am only at the beginning of my journey with dealing with chronic pain.

Here are my findings.
• L2/3 disc protrusion compressing the L2 nerve root (causing pain into the front/side of the thigh).
• L4/5 disc protrusion compressing the L4 nerve root (causing pain into the shin and feet).
• L3/4 and L5/S1 disc height loss consistent with early degenerative disc disease.

Because of this, I’ve got constant lower back pain plus bilateral radiculopathy burning, stabbing pain shooting down both legs and into my feet. It’s made it really hard to function I can’t sit for more than 10–15 minutes, walking is limited, and my sleep is broken most nights.

I’ve already tried lots of treatments (paracetamol, NSAIDs, pregabalin, duloxetine, amitriptyline, tramadol, physio, TENS, ultrasound therapy) but nothing has given me lasting relief. My GP said i have the back of a 65yr old….

It’s starting to affect my mental health too, and I’m worried about what this means for my future as i have been fired from employment and had to move back in with my parents, and i’m worried about losing my enrolment position in university since i cannot attend my classes. I’d really like to hear from people with similar experiences especially anyone who has had nerve root compression this young, or anyone who’s managed their pain long-term without surgery. My GP said i will most likely have to get CT guided epidural steroid injections in my lower back every year for the rest of my life unless i consider surgery. Or manage my pain with opiates, which i’m trying to avoid because i’m worried about addiction and my GP said they aren’t very good for your health long term.

With these findings being unusual in people in their 20s, is this a possible genetic cause since i have had no traumatic injuries in my life?

Thanks for the replies in advance
- Ella

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Profile picture for ellakaluzinski04 @ellakaluzinski04

I'm not hypermobile, I haven't had many dislocations in my life and haven't broken any bones. I think my doctor did a "general" autoimmune blood test, i am not really sure to what extent but since autoimmune problems run on my mothers side of the family my mum is pushing my doctor for further testing, I am not sure if you are from Australia but most of our healthcare is bulk billed or only small out of pocket expenses. I had a look online said rheumatologist appointments in my state are about $120 out of pocket expense. This is something i can afford and will keep this in mind. I have considered seeing a psychologist but they are crazy expensive here and the wait time is ridiculous, possibly a future thing. My parents and I are very close and they are helping me every step of the way, My dad often works away so i don't see him often but he calls me regularly to stay informed and gives me support and my mum is there with me for every doctors appointment to help me advocate for the best care as sometimes I am not a very good communicator and can get a bit flustered especially with a lot of information. The next step my GP recommended is to get into a pain specialist as soon as I possibly can he said me marked as semi urgent moved my wait time from 8 months down to one month, so i am just waiting to get a call from the pain specialist and then the specialist will override what my doctor does and take it from there.

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You should be seeing specialists, not a GP, in my opinion.

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Profile picture for tsch @tsch

You should be seeing specialists, not a GP, in my opinion.

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I have to see the GP before hand and they evaluate weather or not you see a specialist or not as you need a referral

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I dont know where you live, and some insurance does require a referral. If you asked your GP for a referral to an orthopedic doctor, wouldn't they agree? Your GP maybe can order an xray to check your back. An Orthpod can order an MRI, but certain back issues will heal in time without treatment. But if you have pain, there are meds that can help.

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Im 71 yr old man and because of injuries in the army I have had ACDF 5/6 in neck which is replacing a disc and fusing of vertebrae and had L5/6 herniate and caused all kinds of problems.

I won’t go into all my problems because all I wanted to do was reply what I have tried which is just about every med there is along with physical therapy, injections and acupuncture. I was on norco for 30 years which just took the edge off of pain so I could get out of bed.

Because of the push to stop opioids my VA pain doctors finally put me on Buprenorphine 10mcg patch which relieved about 80% of my pain especially the feeling in my feet like I was walking on sharp rocks all the time. It took my pain level from 6/7 on norco to a livable 4/5 and they also added Celebrex which did wonders for my neck and my hands.

Buprenorphine is technically an opioid but has major differences so you should research it. Because of chronic excruciating pain it helps - at least in my case. Everyone is different though.

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Sorry to hear you are going through this, especially at such a young age. I had steroid injections several times... and they may have helped 50% of the pain.... but that only lasted (for ME) a couple of weeks. Has any doctor mentioned doing an ablation on some of the nerves causing most of your pain?? Those don't work for everyone, either.... but it seems that might stand a better chance than just the injections. And I agree with others who have suggested more testing.... especially by a rheumatologist if your family has a history of autoimmune disorders.
I wish you the best and hope you find something that helps! Mike

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Profile picture for tsch @tsch

I dont know where you live, and some insurance does require a referral. If you asked your GP for a referral to an orthopedic doctor, wouldn't they agree? Your GP maybe can order an xray to check your back. An Orthpod can order an MRI, but certain back issues will heal in time without treatment. But if you have pain, there are meds that can help.

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Your GP PCP can order a MRI, but will count on the radiologist to tell them what it means. The orthopedic doc will want you to get it before the agree to see you, and it should be included in the referral.

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Profile picture for bajjerfan @bajjerfan

Your GP PCP can order a MRI, but will count on the radiologist to tell them what it means. The orthopedic doc will want you to get it before the agree to see you, and it should be included in the referral.

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I believe this answer from @bajjerfan should be directed to the original poster. Does not apply to me at all. Even an orthopedic doc will get a radiologists interpretation of an MRI.

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Profile picture for tsch @tsch

I believe this answer from @bajjerfan should be directed to the original poster. Does not apply to me at all. Even an orthopedic doc will get a radiologists interpretation of an MRI.

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Understood, but it was intened to be a general response even tho YOU are the one who mentioned a GP. Nothing the OP said would merit a response such as mine and IMO it would seem out of place. Since the OP started this thread I expect that he monitors it and reads all responses. Needing a referral should be basic knowledge for just about everyone.

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If minimally invasive surgery is an option for you jump on it. This type of procedure can remove the compressing disc material from your nerves therefore decreasing or ceasing your pain. Your weight is normal for a women your height. Are you athletic or do you exercise? Do you have large joint issues? I hope your autoimmune testing is telling for you.

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Hi Ella!
Thank you for sharing your experience. I have a very similar story, actually! I started having chronic back pain around 17. I began getting radio frequency ablations at 18. Still, no one could tell me why I had degenerative disk disease, osteoarthritis, ankilosingspondylolithesis, bone spurs, or any of the other dozen things wrong with my spine. I was previously diagnosed with a rare autoimmune disease: Behcet's Disease. My doctors and I assumed that my daily joint pain and back pain, as well as "growing pains," were all due to the autoimmune disease. I continued having worse and worse back pain until I finally gave up and went to see a neurosurgeon about surgical options, but still did not know WHY my spine was so degenerated. The neurosurgeon was the one who diagnosed me with Ehlers-Danlos Syndrome: Type 3-Hypermobility. It explained why, at that point, my lumbar spine had basically collapsed: my connective tissues were unable to hold my spine and all its parts together, causing me excruciating pain, dysfunction, and deterioration. I, too, was a very "flexible", sporty kid who loved dance and gymnastics, and could do cool tricks with my extremities that I always brushed off as just being evidence of being "double-jointed". Soon, other medical symptoms beyond the spine started coming together, and I tested negative for all the different types of Ehlers-Danlos Syndrome and every other genetic connective tissue disorder available. I have had to undergo two multi-level spinal fusions so far (lumbar: L3-S1 and Cervical and thoracic: C4-T-3) and kyphoplasty, for which I accidentally fractured my L-1 vertebrae following a fall at home due to my POTS. All of my surgeries have been great successes, and I know how lucky I am to be able to say that, especially with my spinal surgeries, because there are so many factors involved; from preparing for the surgery/getting strong enough to withstand the trauma, getting through the surgery, getting through the recovery, and committing to the intense physical therapy and ultimately returning to "everyday" life. I have had to have both of my shoulders operated on because they were dislocated approximately 10-15 times a day. I also grew up constantly spraining my ankles- five times on the right and six on the left. I have also suffered from terrible gastrointestinal complications my entire life, and all of those aspects of EDS made perfect sense for me, as well. I am in no way diagnosing you or giving you medical advice; however, I was a patient at the National Institutes of Health and part of two clinical trials for my Behcet's Disease. While I was there strictly for diagnosing my Behcet's Disease, none of the doctors put together the signs and symptoms that I know now were giant, fluorescent, blinking signs for Ehlers-Danlos Syndrome. The best doctors in the world, with the most research available to them, missed my diagnosis because they were distracted by the more obvious diagnosis. I guess what I'm trying to say is that sometimes you need to listen to yourself, listen to your body, and advocate for yourself. Do not be afraid to ask your doctor questions and speak up for yourself! Remember: although some doctors may have studied your illness or disease during medical school, you have been living with your symptoms day in and day out, so you know yourself better than any doctor. Trust yourself and trust your body. I hope this helps! You can reach out to me at any time on this platform or via any other means. I'm brand new to this website and this online database-sort of thing, so I'm sorry if I'm doing it all wrong.

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