← Return to High grade glioma: waiting for remainder of molecular testing
DiscussionHigh grade glioma: waiting for remainder of molecular testing
Brain Tumor | Last Active: Sep 17, 2025 | Replies (45)Comment receiving replies
Replies to "My husband just found out he has High grade Glioma grade 4 on 8/12, and had..."
After much reading, research, and listening to our treatment team, I 've learned that Glioblastoma symptoms and survival time is unpredictable. Depends on health and age, location of tumor, DNA analysis, response to treatment....and more. My husband was diagnosed in April 2024, had surgery and the standard radiation and a year of chemo. He also was using an Optune device for a year (not for everyone, but worth a look). He has not been on a keto diet, although we have focused on a healthy vegetarian diet (has been vegetarian for over 40 years) with plenty of protein to keep muscle strength. His tumor re-occurred in July 2025. Still some treatment options. Be realistic but keep up your spirits. Wishing you the best.
It looks as though your husband is in the same issue I went through which started in October of 2023. After the radiation and chemo, I was advised of the next steps. The negativity of the Oncologist I was seeing immediately made me get a 2nd opinion. I am so glad I did.
The next treatment was 5 days a month for 6 months of taking the same chemo pills but with the highest dose I could. I was done in July of 2024. The only medication I take now is seizure pills as that is what happened when this was discovered.
Early 2025, my oncologist said there was growth again. She had a wait and see attitude, thank God! My last MRI in early August of this year, the oncologist said just as she suspected, the growth shrunk.
As a side note, due to my original diagnosis which gave me a condition for that of a 5 year old, my oncologist had my blood work sent to the lab again. The 2nd opinion came back with a diagnosis that was different than the first one which I looked up and it pretty much has this as the answer 🤷♀️ why I had this happen is unknown.
Sending prayers and hugs that your husband has good results like I have experienced.
Sjt
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Welcome to the group, wishing you all my best wishes for recovery, keep
us posted please 🙏