Hi Teresa,
Thank you for responding, What is a volunteer mentor?
This happened in Chicago. I was hospitalized 3/10/2023 at Strogers because insurance makes the ambulance take you to the nearest hospital and doesn’t allow a transfer to where you have doctors if that hospital offers the same level of care, Insanity, I was there for 2 weeks then transferred to a rehab where I saw a PT person for 45 min per day, even though I could not stand or walk without a walker and no do reviewed my records,
they basically got paid for warehousing people, I was released home. I had surgery 8/10/2023 at Rush. I still need to use a shower chair, and get upper back pain and SOB, needing to just put on a robe and rest before I can get dressed, It has been 2 years of hell, but I am slowly improving, I kept being given laxatives when I kept saying it felt like a motility problem, Finally got a recital manometry test ordered which was abnormal and was able to get the PT and motility meds, I just started the organic FODMAP diet for 1 week, It has really helped with bloating, distention and pain immediately, Pelvic floor PT and neck PT is also helping, I had a small hernia for years and peptic ulcer disease for 40 years with 3 episodes of nonheliobacter bleeding ulcers, treated w triple meds, I often questioned being on long term PPI, but kept being told it was safe, I found research from NPI saying it is not safe for long term use, risk for osteoporosis and dementia, I now have spinal degeneration and cervical stenosis, small fiber neuropathy, Pfizer was sued for lying to docs,, but the lack of nutritional training in medical schools is an abomination as far as I am concerned, How can they advise people about health if they are clueless about healthy lifestyle choices? Profits over people is the norm, No one ever tried to find out why I had recurring ulcers, just gave a bandaid pill, that I am sure caused malabsorption and malnutrition not to mention the serious changes to microbiome, I think this also made me more diet alone won’t treat SIBO, I am hoping my doc will prescribe without the breath test, I am waiting on a response, I hate being my own case manager, I wish I could just assume the patient role, but I have learned that can get you dead.
@lindasq, it is really hard to be your own case manager and advocate when you're ill. You've worked very hard these past years to get where you are finally seeing some improvement. It's a long and tiring road.
You asked what is a volunteer mentor. These pages explain more about how Mayo Clinic Connect is moderated https://connect.mayoclinic.org/blog/about-connect/tab/moderators/ and the important role of volunteer mentors https://connect.mayoclinic.org/blog/about-connect/tab/volunteer-mentors/