Mine has been a very complex case, I had covid 3/2020. It was probably the cause of diaphram/ligament weakening and reactivation of VZVm and hyoercoagubility, I went to the hospital . Hgb was 4.8, I had slow GI motility that was ignored, I had bilateral pulmonary PE, aortic thrombus, and .ct showed large hiatal hernia, my O2 was 87%. 2 days later the CT scan showed organoaxial volvulus stomach which should have been treated urgently, but I was never even told about it, It wasn’t until I saw the vascular surgeon for fup for the aortic thrombus thst he said you need surgery. It wasn’t until I still delayed to get and echo which tool another months so surgery was delayed for 5 months, transfusions had brought up my Hgb to 9.3, but iron transfusions were not started for 4 months and required 8 infusions over a year to normalize RDW. my glucose was high in the high in the hospital and I c/o memory issues, loss of basic math skills, word and name finding issues, but no head CT was done for a year showing an old R basal ganglion lacunar infarct, All of these things contributed to damage to the GI mucosal, and I now have enteric neuropathy and recently bleeding esophagus, gastritis, and duodenitis, Medicare does not pay for a dietician unless you have diabetes or kidney disease, After surgery, I was just told to eat a soft diet, Bad advice, Healthcare in America is very broken, I started reading, and it looked like an organic whole food plant based diet was best for healing endothelial tissue. I told my doc that I was trying that, No response, It wasn’t bad, but also wasn’t good, The damage to the gut and the med to lower the PH put me at risk for SIBO, I was supposed to get a breath test, but it was scheduled out full. I was told to call back, No one cared, I was having 3-4 loose stools daily w abd bloating distention and pain and no help, I c/o avout concerns of malabsorption and malnutrition given my hair, skin, and nail issues. It was like pulling teeth to get labs, I did need to supplement calcium, magnesium, and Vit D, I am still waiting for SIBO treatment so I have started an organic FODMAP is it has helped with bloating . I am taking Voquezna for the bleeding esophagus, procalapride for motility, and linzess for constipation, I feel like our health care system is like dealing with a withholding, negligent, abusive parent, It is all you have but it really sucks, I have gotten more information just asking google, Any oxy have any good ideas?
@lindasq
I am so sorry to hear of all of the delays you have experienced in diagnosis as well as treatments. I can understand your frustration. When did you finally have surgery?
I hope you provide an update as to the effectiveness of the new FODMAP diet. How long ago did you start the FODMAP eating plan?