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Anyone have experience with gastrointestinal stromal tumor (GIST)?
Sarcoma | Last Active: Jul 2 10:21pm | Replies (106)Comment receiving replies
I was having chest pain went to ER did ct scan. Came to my room said you are not having a heart attack but you do have cancer GIST. Go to gastroenterologist this week Gastrointerologist did EUS confirmed GIST went to gastroenterologist onocologist had surgery said they removed all cancer on left side of stomach and small section of esophagus NO gleevec gave me no chemo nothing go back to Dr this on mon 9/8/25. Good luck to me:)
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@dougie1225 did you see a GIST specialist? Surgery is rough. I would want to check in with a specialist. A good source of information I found for GIST is called the Life Raft Group. On Facebook or Google it. They are very helpful. Best of luck and healing to you.