Connect
← Return to Seizures due to autoimmune encephalitis
Discussion
Seizures due to autoimmune encephalitis
Autoimmune Diseases | Last Active: Sep 7 7:54am | Replies (4)Comment receiving replies
They really haven’t classified them. And she does know they’re coming and remains aware during them. We meet with an Immuno-neurologist in October and have another MRI. Thanks for the links, I will definitely check them out.
Replies to "They really haven’t classified them. And she does know they’re coming and remains aware during them...."
Connect
Good Morning @nh1973
Thank you for this additional information. Usually, when someone remains aware during a seizure, it's typically a focal aware seizure, also known as an aura. However, please do check this with her doctor.
Curious to learn more, I looked into seizures related to autoimmune encephalitis on the Epilepsy Foundation website, finding some relevant information that aligns with what you've described. I'm sharing it here with you:
Seizures due to autoimmune encephalitis
https://www.epilepsy.com/causes/autoimmune
According to the Epilepsy Foundation, focal seizures are indeed the most common type in autoimmune encephalitis cases and frequently occur multiple times per day, which matches your daughter's experience.
Most encouragingly, the site notes that early diagnosis and prompt treatment of autoimmune epilepsy can potentially lead to seizure freedom. So, there's a genuine reason for hope. 🙏
October is almost there! Please let me know how the appointment with the immuno-neurologist went and share an update when you have the chance.
Wishing you all the best!
Chris
View Translation