Anyone have Scoliosis and a total hip replacement (THR)?

Thank you!

I am currently at the SRC in Celebration Florida now!! My curves at 65 and 75. So far so good. Opted for the 3 week program because 8 want to get as much change as possible. Happy to keep you posted on my progress.

I'll be interested to hear how you do! Best of luck!

I'm a 71 yr. old female with scoliosis. My spine does a slight bulge to the right in the scapular region. Then it shoots left in a "C" shape and completes its trip by then traveling to the right in a large "C" arc, ending approximately where my natural waist used to be. The spine then turns left and ends approximately mid-back before doing another left-handed curve where my lumbar spine starts. I've been to many facilities and doctors in the Kansas City Metro. It all began in the mid nineties. At Providence Hospital, north of the Missouri River on the Missouri state line, Dr. Harold Holladay, neurosurgeon, did 4 or 5 laminectomies in the cervical and lumbar spines. He found Degenerative Disc Disease, with considerable disc damage, lordosis, spondyolisis among other problems. He performed the incision for the neck surgery in the front of my neck. It was a succesful surgery and provided about 40% pain relief. Then I went to a physiatrist, Dr. Steven Simon, on the Kansas side of the state line. He tried ablations and other injections, all of which had little to no effect on the pain. We tried a TENS unit, which helped for a few weeks. I purchased a padded chair covering, electronic, with massaging "arms," but it did nothing for my neck pain. I began to have ferocious migraine headaches, about 20 per month. I continued with my post-surgical physical therapy. Dr. Simon prescribed some pain relievers. The pain was centered in the large muscles in the left side of my head and neck, and the large muscles in both sides of my upper back and in the scapular area. I could see these muscles on the left side of my back looking large, twisting and ropey. They were hard as rock. I switched neurosurgeons, going to Kansas State University Medical Center, and Dr. Dr. Rasheed Sayed. He recommended a Spinal Cord Stimulator. At that point, my greatest pain was at my right waistline, where my waist had been pushed in several inches. This is going to sound childish, but it felt like my last rib was touching and rubbing something it had no business doing. I could no longer lift anything. The SCS was a resounding success.
I'm searching for an orthopedic doctor who can help me understand this convoluted disease, and its possible path forward.I want specialized physical therapy geared toward strengthening bones, muscles and joints just where I need them. I want to be strong again, and be able to perform life-affirming movement. I should add that in the early two-thousands, I had to have a total hip replacement, performed brilliantly by Dr. David Anderson at the Menorah Medical Center. I've read about the Schroth Method and Pilates to strengthen my core, and my arm and leg muscles and suddenly unattractive lax and atrophied mid-section. But I can't get good referrals from any otherwise qualified, competent health professionsl. They all say they're "...just not that familiar with that area of rehabilitation." Everybody's a Physical Therapist, but it seems they've never heard of scoliosis. Every doctor I ask for help claims complete ignorance. Can someone at the Mayo Clinic PLEASE point me in the right direction --- and soon? Because I'm a senior and on a restricted income, I don't have the resources to travel with my husband to any of your facilities. I would need resources in and around Kansas City, Missouri, Kansas City, Kansas and all its suburbs. I will keep every piece of information and every name in the strictest of confidence. Gratefully, I thank you for your advice. Thank you.

Hello, this is Terance Helling again, who just one second ago posted a lengthy diatribe on my life with scoliosis. I wanted to add that all my scoliosis symptoms appeared seemingly at once when I was 48. Also wanted to add that my physiatrist, Dr. Steven Simon, prescribed several pain relievers, including muscle relaxants, anti-inflammatories, and meds such as hydrocodone. I think there was a benzodiazeprine (sp?) in there - and, finally, fentanyl. He started with fentanyl lollipops, but when I became so hopelessly unable to function, I wanted off this dangerous form of fentanyl, to a more controllable , safe, most assuredly less addictive form. The med was giving me excellent, reliable pain relief, but the effects it had on my daily functioning, basic reasoning and psychological state of mind were horrific. Dr. Simon changed the med to a patch I wore several days before replacing it with a fresh patch. The FBI was investigating Dr. Simon at the same time, after a whistleblower told the agency Simon was allegedly encouraging other patients to sign a 'contract' with him, stating that they fully realized the drug was FDA approved for cancer patients who required strong, potent, easily accessible, immediate pain control, and not for any other use. I believe the contract also held him harmless for certain bad and/or fatal side effects. Simon did not present me with a contract or aggrement like this, but I was so desperate for relief I would have taken it with no holds barred. I had to be so very careful while taking this, because I knew what its deadly potential was. Meanwhile, Simon was out of town several weekends at the drugmaker's behest, earning a generous fee, to emcee conferences for doctors interested in the medication. I worked as a Television Journalist at the time, and I suspect Dr. Simon was wary of inflammatory information about his activities getting public exposure, and avoided telling me anything about it. All of this happened before Mexican drug cartels back-filled so-called fentanyl capsules with deadly, illegal additives that have now killed thousands of people. So this time period was tense, dangerous for my job security, because sometimes when I was on air I was under the influence of fentanyl. My news director had put me on an overnight shift, in which a TV photographer and I trolled Kansas City, looking for what the industry called "breaking news." Not finding any, I had to locate some such news story from the 10pm news the night before and find new information to update the story. Most often, what I cobbled together was stale and repetitive, but my news director urged me to "make it sexy again...pump it up all you can." Continue propping it up as "breaking news. And make it a LIVE report. At 4:30a.m. And change it up 3 or 4 times with new info. I knew my boss was setting me up to present a substandard product. I was a journalist who wanted to report well-researched news, help the helpless, hold politicians' feet to the fire, ensure the scool district was trying to become state accredited again. I tried for all I was worth, in terrific pain, taking the meds my doc prescribed, helping my husband raise two daughters. The boss thought I was too old, at 40, so he was forcing me out. It worked. I quit. And went home in pain and with no job. I want to use the time I have left to live a good life. Thanks

Hello paltavilla1 , I think my curve and rotation are close to your 67 thoracic and 74 lumbar but I haven't been able to get anybody to tell me what they are? Who would I ask? I have asked the surgeon's office that fused my thoracic spine L3 L4 & L4 L5 and they told me there was no mention of that in his clinical notes? Xray's MRIs & CTs don't show it?
I'm at a loss & I'm going to Mayo next week for evaluation........