I sort of feel like I'm in the same boat. I'm in the process of testing - looking into rhuematoid arthritis and it's most likely? EDS but I can't get in to see the MDs for months and months to actually run the tests and do the evaluations so for now I'm just in PT. Some days are okay but others are awful and sometimes I wake up from it in the middle of the night feeling like one of my joints is exploding like a dying star. No one in my family seems to have much sympathy - including some of my internists and I'm getting frustrated. I'm not generally whiny about pain so I think this is probably pretty bad. I also seem to have a chronic headache which may be related or may just be stress but I'm pretty upset about my family's (non) reaction. It's more complicated than just the health stuff but it sure sucks so I can empathize with your situation. Good luck with your diagnosis! I feel for you.