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LeighO57 avatar

Anyone out there diagnosed with Pudendal Neuralgia?

Chronic Pain | Last Active: Sep 23 9:13am | Replies (238)
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Profile picture for tessielou @tessielou

I am currently getting I touch with research department of neurology in Tampa Florida where I’m told they do research on pudendal nerve pain

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Replies to "I am currently getting I touch with research department of neurology in Tampa Florida where I’m..."
John, Volunteer Mentor | @johnbishop | Sep 5 8:21am

Welcome @tessielou and @nessafarrow, It's great to see that you have connected and can share your experience with pudendal neuralgia. It sounds like both of you have been dealing with the pain for some time with not much relief. @mikaylar and others may be able to share their experience with you also. If you haven't already seen it, there is some information from the NIH on the treatment and management of Pudendal Nerve Entrapment - https://www.ncbi.nlm.nih.gov/books/NBK544272/.

@tessielou and @nessafarrow, have you done any research on the condition?

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dcdusek | @dcdusek | Sep 21 10:36am

Can you share more about this? I belong to several facebook groups for PN sufferers and I never heard about the Tampa research. I’d like to share it with the groups.

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