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Brain Implant, DBS, Post Stroke, Thalamic Pain Syndrome. Info?
Brain & Nervous System | Last Active: Mar 22 2:37pm | Replies (24)Comment receiving replies
I'd like to learn more about this and your journey. My husband has post stroke pain from a Hemorrhagic stroke affecting the thalamic region and we have only received a diagnosis but have not found help yet. I'm wondering if we could get help at the Mayo. We leave near Rochester. Thank you for sharing.
Replies to "I'd like to learn more about this and your journey. My husband has post stroke pain..."
Hi @birke - wondering how things are going with your husband's stroke recovery? You'd mentioned he had post stroke pain. Is he still experiencing this?
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Birke,
Look into/ask neurologist about off label use of D.B.S. implant for pain. You may get some resistance since not all neurologists are knowledgeable about it. I was hopeful but it did not aide in pain reduction. Now a different neurosurgeon wants to use R.N.S. off label implant for pain. A modified version of R.N.S. with different electrode location. Pain is the hardest thing and least responsive to these off label uses.
Paul