All the above comments are great. However, I would add that maybe it has to do with your insurance coverage. I had a 2.5cm NET in my SI with similar mets to you. After 3 months of Lanreotide and biweekly extreme bloating and vomiting I went to the ER where a CT scan with dye revealed a full blockage leading to an emergency operation removing the NET, 8 lymph nodes, GB, 10in of SI. You may have a partial blockage at times(things move around) causing your pain. You need a NET Specialist that knows the questions to ask you and how to work with your insurance. I don't think your specific doctor can coach you on symptoms. Ie insurance regulations etc. in your situation a second opinion could help. I got a second opinion for a neighbor oncologist and it frankly saved my life. 2 yrs, 4months later on monthly Somatuline Depot shots and I feel great and I'm very active. I wish you the best.🙏