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NJH and bronchiectasis

MAC & Bronchiectasis | Last Active: Sep 7, 2025 | Replies (29)

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Hi robot,
I can imagine how relieved you must feel that oxygen is not related to the
lungs. I also failed 6 minutes walk test after the recent flare up. But I
feel it related more to congested nose area, and I don't feel like I get
enough air in through my nose. But they will find it out. Did they give you
specific instructions on how to do ILO/VCD Release Breathing technique? I
just went over out of state patients process with NJH. Then I just wait for
their calls. How did you get into this Brisupri support program? That
sounds nice if they can keep track on you while you take the medication.

Take care!

Ling

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Replies to "Hi robot, I can imagine how relieved you must feel that oxygen is not related to..."

Hi Ling
They gave me detailed printouts of all breathing exercises & had me practice them in their office. The support program evidently is part of the roll out of this drug by the drug company to insure safety & track results.