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I have LCIS, anyone else?

Breast Cancer | Last Active: Sep 24 3:59pm | Replies (86)

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I am thinking of doing ultrasound screenings following my preventative double mastectomy for LCIS. It has been 2 years since the mastectomy and I have told to just do periodic palpating of the chest wall and underarms as a way to monitor for abnormalities. Does anyone have any experience or inputs as to whether ultrasound can detect anything cancer related for someone like me with mastectomy without reconstruction?

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Replies to "I am thinking of doing ultrasound screenings following my preventative double mastectomy for LCIS. It has..."

LCIS typically doesn't spread it is when it becomes invasive; and of course it's called invasive lobular carcinoma (ILC). so since having your mastectomy, you've greatly reduce the risk of any spreading. But due to the linear nature of the cells in LCIS and ILC an ultrasound would be not able to visualize this rare form of cancer; it is thread like in nature. An MRI will visualize LCIS and metastatic cells because there is an intravenous contrast dye that lights up the cells. So the key is to continue to monitor your chest wall and if you feel a difference, see your surgeon - if they think something's up, they'll order an appropriate diagnostic. That said if metastatic BC spreads to bone the bone will deform and you would be able to " see" the presence of cancer using ultrasound - but you don't see the cancer cells themselves and if you did have what appeared to be bone cancer, they would still have to decide whether the cancer is in the bone originally or metastatic from another cancer in your body. I work in bio engineering and I know our diagnostic imagery is getting better and better so hopefully in the future, we won't have to use radioactive isotopes for contrast dyes -and/or maybe we will be able to create higher Fidelity pictures with ultrasound? Time will tell.. of course if there are any breakthroughs and visualization of LCIS and ILC I will gladly post links! Knowledge is power.... good luck with your decisions and your journies!