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I am afraid the pain will never end.
Polymyalgia Rheumatica (PMR) | Last Active: Sep 12 1:49pm | Replies (71)Comment receiving replies
Note: I am 79yo.
My personal goal is to be in remission next year by my 80th bday.
My self tapering schedule was 10% a week if no discomfort. Easiest for me was alternate 5mg one day and 4 the next day which equals 4.5 total.
If not ok stay for 5-7 days until comfortable.
If no discomfort, then go to 4 every day.
Repeat.
As long as I have had PMR, I force myself to get exercise everyday. Minimum a 2 mi walk. I have a Corrective Movement Specialist, i,e, trainer/pt who keeps me moving.
With that said, she has been a HUGE help and my number one resource.
One of my drs sent me for Pool PT that was PT in a tank against jets which led me to pool walking which is easy on the body. I have taken advantage of Accupuncture, shock wave therapy, TVT (targeted vibration therapy). I have been throwing everything at the PMR except the kitchen sink. It has been a slooooowwwww road, by inches, with occasional big leaps. BTW: I do have problems with the weather, humidity dew point…..a trip to Alaska away from it and I was a new person.
So the answer to your question “ Did you notice help with pain and fatigue using….”……I have no clear answer.
DON’T give in!
Replies to "Note: I am 79yo. My personal goal is to be in remission next year by my..."
Thanks so much! Wonderful insight! I too have been fighting this with exercise and PT. What I hear you share here is so valuable. I will pursue this course of action. But most of all, staying mentally tough seems to be key!
Thanks again!
I am 77 yrs old and just finishing my first prednisone cycle. I started with 30 in March and am now down to 5mg and doing fine. I feel a bit more pain and stiffness in back and shoulders but Tylenol takes care of it. I see my rheumatologist next week and am not sure where she will recommend we go next. I assume continue to taper and see how I do. My question--are there specific exercises for PMR or are there exercises to avoid? Is it a good idea to get some PT and would that help to prevent flare ups?
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Thank you for all of that information! I do not feel so alone now. I will keep pushing. It's been such a strange and life altering experience. My first rheumatologist was not helpful. My new rheumatologist (while a very poor communicator) is quite smart, is current on research and genuinely cares. I feel like between him and this new community I have found that I am going in the right direction. Again, thank u.