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I am afraid the pain will never end.
Polymyalgia Rheumatica (PMR) | Last Active: Sep 12 1:49pm | Replies (71)Comment receiving replies
What were your symptoms of withdrawal? I am at the point of tapering Prednisone from 5mg( which gave me my life back) now to 2.5mg. Pain is noticeable, but the crushing fatigue and weakness is better. My Rheumatologist said most likely PMR was triggered by Covid. Cholesterol shot up quickly on steroid treatments. This is what my Rheumatologist wants to avoid: heart disease.
Did you notice help with pain and fatigue using Kezvara as efffectively as with Prednisone? Thanks!
Replies to "What were your symptoms of withdrawal? I am at the point of tapering Prednisone from 5mg(..."
So far, I have not noticed a difference with Kevzara since I have only been on it 2.5 weeks. I wish I could offer I better input. My experience with Prednisone withdrawal was that I went down 1mg per week starting from 20 mg. At 15 mg the pain and fatigue set back in. At 10mg the pain was do-able but constant and at 8 mg the pain was not tolerable. I am now back to 12 mg. The fatigue is brutal. But, again, I am early days with Kevzara. I do not intend to titrate down for at least another month.
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Note: I am 79yo.
My personal goal is to be in remission next year by my 80th bday.
My self tapering schedule was 10% a week if no discomfort. Easiest for me was alternate 5mg one day and 4 the next day which equals 4.5 total.
If not ok stay for 5-7 days until comfortable.
If no discomfort, then go to 4 every day.
Repeat.
As long as I have had PMR, I force myself to get exercise everyday. Minimum a 2 mi walk. I have a Corrective Movement Specialist, i,e, trainer/pt who keeps me moving.
With that said, she has been a HUGE help and my number one resource.
One of my drs sent me for Pool PT that was PT in a tank against jets which led me to pool walking which is easy on the body. I have taken advantage of Accupuncture, shock wave therapy, TVT (targeted vibration therapy). I have been throwing everything at the PMR except the kitchen sink. It has been a slooooowwwww road, by inches, with occasional big leaps. BTW: I do have problems with the weather, humidity dew point…..a trip to Alaska away from it and I was a new person.
So the answer to your question “ Did you notice help with pain and fatigue using….”……I have no clear answer.
DON’T give in!