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I am afraid the pain will never end.

Polymyalgia Rheumatica (PMR) | Last Active: Sep 12 1:49pm | Replies (71)

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I have gone into a flare twice. The flares are tough mentally, because they resulted in increasing the prednisone dosage (e.g. a reduction from 2.0 to 1.5, resulted in having to go back up to 2.5) so I can function. Currently, after 30 days at 2.5 and another 30 days at 2.0, I reduced the dose to 1.5 a few days ago. No pain so far, but really fatigued.

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Replies to "I have gone into a flare twice. The flares are tough mentally, because they resulted in..."

Got it. Thank u for clarifying. And yes, the fatigue with this is pretty next level isn't it?

Possibly you need to transition to a reduction. What I learned to do the first time was to talk the higher dosage on day one, then the lower dosage on day two, then the higher dosage on day 3, than the lower dosage on day 4. I would repeat the cycle until I felt good - then I would move to the lower dosage as a steady amount. At 2.0 mg to 1.5mg is a 25% drop in dosage. moving from 5mg to 4mg is only a 20% drop. If you look at it in percentage of the drop it may be easier to understand what you are asking of your body. You need to understand that between 10mg and 5mg you are at the level that your adrenal glands need to kick in and pick up the slack. Read up some on adrenal insufficiency both here and Dr Google. It is not uncommon to confuse the pain at this level to be a flare when it is really associated with the adrenal glands not filling in at the rate you are dropping. My Rheumy's NP says they have a few patients who just cannot get below 2mg. Talk to your doctor so they know and possibly can coach other approaches as well. Everyone's journey is unique, that is the one dependable fact.