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How long should I expect it to take to get consults with oncologists?
Prostate Cancer | Last Active: Sep 5 7:38am | Replies (9)Comment receiving replies
I'll be 77 in December.
I communicated with the Mayo referring NP yesterday, inquiring about the cribriform & Decipher. (I've not seen an MD urologist at Mayo; I went to Mayo on my own w/o a urologist referral because no one in Kansas City was doing the transperineal biopsy w/o anesthesia that Mayo performs. My Kansas City urologist wanted to do a transrectal biopsy w/o first doing an MRI. I had to talk this urologist into ordering and MRI & it showed 2 PIRADS 5 lesions, one of which was an anterior lesion that might not have been caught during a standard grid transrectal biopsy.) The Mayo referring NP indicated that because of the cribriform he could order a PSMA PET scan at Mayo, which would be useful to have prior to my meeting with the oncologists. (Again, one has to wonder why the patient is the one who needs to initiate such matters. The Mayo NP discouraged me from having this PET scan done in Kansas City. [We have a National Cancer Institute Designated Comprehensive Cancer Center here]) He further indicated that when I have my consults with the Mayo oncologists they may want to do a Decipher test.
Thanks for your prompt response to my query. I appreciate this & your numerous other informative posts on this forum.
Replies to "I'll be 77 in December. I communicated with the Mayo referring NP yesterday, inquiring about the..."
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It’s great to hear you’re being so proactive. Yes, that is necessary in order to get the proper treatment, It seems to be illogical But not every doctor really knows what they’re doing when it comes to an advanced case of prostate cancer like you have.
I have a really great GU oncologist But at one point, she put me on a PARP Inhibitor since I have BRCA2, But I knew that having Nubeqa Would be a better start since I could then have the PARP inhibitor when that failed, And the side effects of the PARP are quite aggressive,. She allowed me to switch and I’ve been undetectable for 20 months . She can answer almost every question I’ve ever come up with, But I have been proactive like you need to be.
I will be 78 in November and have had prostate cancer for 15 years. I still look for the best treatment, you never know when it’s coming back.