Hi @nh1973
Welcome to our Connect group!
I understand how isolating an epilepsy diagnosis can feel. The support I've found in this community has been invaluable, and I hope you'll find the same comfort here.
While my knowledge of autoimmune encephalitis is limited, I've noticed valuable past discussions on this topic that might be helpful.
What type of encephalitis? Autoimmune, limbic, or encephalopathy?
https://connect.mayoclinic.org/discussion/is-it-autoimmune-encephalitis-or-encephalitis/
I'm also connecting you with @valm, who has shared her experience with autoimmune encephalitis:
https://connect.mayoclinic.org/comment/174620/
Regarding your daughter's daily focal seizures, I can imagine how challenging this must be for her and you. I experienced focal seizures for about 10 days following my COVID vaccination, and it was truly overwhelming. So, I have some sense of what she might be going through.
To better understand her situation, could you perhaps share:
- Does she remain aware during the seizures, or does her consciousness become impaired?
- Has her neurologist classified these as simple partial seizures (auras) or complex partial seizures (focal impaired awareness)?
Understanding these details might help connect you with others who have similar experiences.
I'm hopeful you'll connect with others here who understand your journey and can provide the support and practical advice that makes all the difference.
Chris