Alternative to Tamoxifen other than AI
I had lumpectomy and radiation for invasive ductal carcinoma stage 2. Went through both very easily. Then I was told to start Tamoxifen. Nothing easy there. I'm miserable so taking a break after two and a half months. I should not take AI because of osteoporosis. And I've read that Tamoxifen results are all the way from 40% to 80% effective to keep cancer from recurring. Which is it? And surely there are other similar drugs to Tamoxifen? Anyone?
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@shek. This method of using egg shells is new to me. Thank you.
What is a phycologist? Or is this a typo?
I have had two ILC, stage 2 diagnosis' with lumpectomy and 21 rounds of radiation each time. First time (5 years ago), I was given Letrozole and stopped taking it after two years. The side effects were tough. Now, after the second surgery (other breast), I am taking Exemstrane and it is really making me nauseated. My oncologist recommended taking 1/2 of the 25 mg with dinner. It is better, but still on and off nauseous. What a diet! For now, we are not even talking about increasing the dose until we see if my body can adjust. I have been taking this med for about two months now.
Sending good vibes out there to all of you trying to tolerate these meds!
That's odd that I have more issues with the nonradiated breast instead of the radiated one. The radiated one (2 years ago), dispite a large and thick hematoma, heals well. The nonradiated one still has some tightness and maybe some adhesion issues that causes pain when I stretch. The pain only last about 2 seconds and it feels like something is about to rip off my chest. My surgery was in January this year. Massage helps a lot.
Why is radiation suggested when you already had mastectomy? Thanks.
2 lymph nodes were removed, & there was cancer in one of them; I believe that's why the radiation. I'm almost halfway through the 30 sessions, & the initial burning has completely subsided.
After the ductectomy in 2010, I had ongoing catches in my right side muscles & rib cage despite a yoga practice; so far post mastectomy I'm doing geriatric Pilates, & am more flexible than I'd been for a while. I'm to get my first lymphatic massage in 2 weeks; looking forward to it.
Thanks for a quick response. Wow! You recovered fast from mastectomy. It took me more than 8 weeks to recover and I didn't start rehabilitation until month 3. You are doing the things that my PT is helping me: lymphatic massage and pilate. I've had massage a few times and now start doing it at home once or twice a day. It helps. Good luck with rehabilitation and thanks again for a very informative response.
A bit more info, as you mentioned the difficulties with your non-irradiated breast. My healthy breast just didn't feel right, neither of them did. No lumps but they ached, sometimes intensely. I had just been cleared to do mammograms every two years rather than annually, but went in at 17 months & there was the DC. After the mastectomy, my entire chest relaxed; it was quite odd. No more pain in my left breast, & as I mentioned, my right side is now free of the hitches it was having. The body is an amazing thing, way beyond my intellectual understanding.
I hope your rehab goes smoothly, & that your remaining breast calms down.
I still feel tightness when raising my arms and the pain on the healthy one is a new thing after 8 months out from surgery and with therapy. It's more like adhesion that tries to break up when I raise my arm. Other than that I'm ok.
Your feeling of relaxing is a good indication that your cancer is all gone. I believe that the way our body communicates. I hope I'll get that feeling some day or maybe I'm just a complainer! I have to remind myself that I'm among the lucky ones that cancer was detected early.
Thank you for your good wishes and good news. Every time I hear good news, I feel encouraged!
In my opinion they are all very poor drugs with terrible side effects
It puts in a position to pick our poison.
I pray you find a solution.
I’ve been taking exemestane every other day. I found an article in ASCO about taking exemestane 3 times a week is noninferior to daily dose. Your half dose every day sounds a lot better. I’ll try that. Thank you!