Alternative to Tamoxifen other than AI

Posted by luckbme @luckbme, Jun 25 11:45pm

I had lumpectomy and radiation for invasive ductal carcinoma stage 2. Went through both very easily. Then I was told to start Tamoxifen. Nothing easy there. I'm miserable so taking a break after two and a half months. I should not take AI because of osteoporosis. And I've read that Tamoxifen results are all the way from 40% to 80% effective to keep cancer from recurring. Which is it? And surely there are other similar drugs to Tamoxifen? Anyone?

Interested in more discussions like this? Go to the Breast Cancer Support Group.

Profile picture for shek @shek

As far as calcium.
My phycologist gave me a way to get the best calcium.
Save all your egg shells
Boil them and then cook them in the oven on low about 20min.
(This is what I do) when they are cool grind them up into a fine powder. (I keep mine in a small glass jar)
Then mix 1 teaspoon in some Greek yogurt or cottage cheese.
I mix cottage cheese, any kind of fruit (blueberries) and a little raw honey. Easy to eat, doesn’t cost anywhere what the supplement cost.
Hope this helps.

Jump to this post

@shek. This method of using egg shells is new to me. Thank you.

What is a phycologist? Or is this a typo?

REPLY
Profile picture for health77 @health77

Tamoxifen can cause a second more debilitating

cancer,beware! So many horrible options are making us into lab testing animals.Read some of the studies and test results regarding all the AI’s. It is a way to become better informed.

Jump to this post

I have had two ILC, stage 2 diagnosis' with lumpectomy and 21 rounds of radiation each time. First time (5 years ago), I was given Letrozole and stopped taking it after two years. The side effects were tough. Now, after the second surgery (other breast), I am taking Exemstrane and it is really making me nauseated. My oncologist recommended taking 1/2 of the 25 mg with dinner. It is better, but still on and off nauseous. What a diet! For now, we are not even talking about increasing the dose until we see if my body can adjust. I have been taking this med for about two months now.

Sending good vibes out there to all of you trying to tolerate these meds!

REPLY
Profile picture for lauriecub @lauriecub

Hi. I'm 73, had DCIS in right breast 15 years ago, had a ductectomy & course of radiation. Diagnosed this year with invasive DC right breast, so had a mastectomy on June 12. Healing from surgery pretty well, but intense, ongoing burning pain across right chest & armpit. Radiologists' office says probably nerve pain from last course of radiation, triggered by the trauma of the mastectomy. Makes me very wary of having radiation again, which is the suggested treatment. Anyone else have this experience?

Jump to this post

That's odd that I have more issues with the nonradiated breast instead of the radiated one. The radiated one (2 years ago), dispite a large and thick hematoma, heals well. The nonradiated one still has some tightness and maybe some adhesion issues that causes pain when I stretch. The pain only last about 2 seconds and it feels like something is about to rip off my chest. My surgery was in January this year. Massage helps a lot.
Why is radiation suggested when you already had mastectomy? Thanks.

REPLY
Profile picture for myoga @myoga

That's odd that I have more issues with the nonradiated breast instead of the radiated one. The radiated one (2 years ago), dispite a large and thick hematoma, heals well. The nonradiated one still has some tightness and maybe some adhesion issues that causes pain when I stretch. The pain only last about 2 seconds and it feels like something is about to rip off my chest. My surgery was in January this year. Massage helps a lot.
Why is radiation suggested when you already had mastectomy? Thanks.

Jump to this post

2 lymph nodes were removed, & there was cancer in one of them; I believe that's why the radiation. I'm almost halfway through the 30 sessions, & the initial burning has completely subsided.
After the ductectomy in 2010, I had ongoing catches in my right side muscles & rib cage despite a yoga practice; so far post mastectomy I'm doing geriatric Pilates, & am more flexible than I'd been for a while. I'm to get my first lymphatic massage in 2 weeks; looking forward to it.

REPLY
Profile picture for lauriecub @lauriecub

2 lymph nodes were removed, & there was cancer in one of them; I believe that's why the radiation. I'm almost halfway through the 30 sessions, & the initial burning has completely subsided.
After the ductectomy in 2010, I had ongoing catches in my right side muscles & rib cage despite a yoga practice; so far post mastectomy I'm doing geriatric Pilates, & am more flexible than I'd been for a while. I'm to get my first lymphatic massage in 2 weeks; looking forward to it.

Jump to this post

Thanks for a quick response. Wow! You recovered fast from mastectomy. It took me more than 8 weeks to recover and I didn't start rehabilitation until month 3. You are doing the things that my PT is helping me: lymphatic massage and pilate. I've had massage a few times and now start doing it at home once or twice a day. It helps. Good luck with rehabilitation and thanks again for a very informative response.

REPLY
Profile picture for myoga @myoga

Thanks for a quick response. Wow! You recovered fast from mastectomy. It took me more than 8 weeks to recover and I didn't start rehabilitation until month 3. You are doing the things that my PT is helping me: lymphatic massage and pilate. I've had massage a few times and now start doing it at home once or twice a day. It helps. Good luck with rehabilitation and thanks again for a very informative response.

Jump to this post

A bit more info, as you mentioned the difficulties with your non-irradiated breast. My healthy breast just didn't feel right, neither of them did. No lumps but they ached, sometimes intensely. I had just been cleared to do mammograms every two years rather than annually, but went in at 17 months & there was the DC. After the mastectomy, my entire chest relaxed; it was quite odd. No more pain in my left breast, & as I mentioned, my right side is now free of the hitches it was having. The body is an amazing thing, way beyond my intellectual understanding.
I hope your rehab goes smoothly, & that your remaining breast calms down.

REPLY
Profile picture for lauriecub @lauriecub

A bit more info, as you mentioned the difficulties with your non-irradiated breast. My healthy breast just didn't feel right, neither of them did. No lumps but they ached, sometimes intensely. I had just been cleared to do mammograms every two years rather than annually, but went in at 17 months & there was the DC. After the mastectomy, my entire chest relaxed; it was quite odd. No more pain in my left breast, & as I mentioned, my right side is now free of the hitches it was having. The body is an amazing thing, way beyond my intellectual understanding.
I hope your rehab goes smoothly, & that your remaining breast calms down.

Jump to this post

I still feel tightness when raising my arms and the pain on the healthy one is a new thing after 8 months out from surgery and with therapy. It's more like adhesion that tries to break up when I raise my arm. Other than that I'm ok.

Your feeling of relaxing is a good indication that your cancer is all gone. I believe that the way our body communicates. I hope I'll get that feeling some day or maybe I'm just a complainer! I have to remind myself that I'm among the lucky ones that cancer was detected early.

Thank you for your good wishes and good news. Every time I hear good news, I feel encouraged!

REPLY

In my opinion they are all very poor drugs with terrible side effects
It puts in a position to pick our poison.
I pray you find a solution.

REPLY
Profile picture for dea2xILC @darack

I have had two ILC, stage 2 diagnosis' with lumpectomy and 21 rounds of radiation each time. First time (5 years ago), I was given Letrozole and stopped taking it after two years. The side effects were tough. Now, after the second surgery (other breast), I am taking Exemstrane and it is really making me nauseated. My oncologist recommended taking 1/2 of the 25 mg with dinner. It is better, but still on and off nauseous. What a diet! For now, we are not even talking about increasing the dose until we see if my body can adjust. I have been taking this med for about two months now.

Sending good vibes out there to all of you trying to tolerate these meds!

Jump to this post

I’ve been taking exemestane every other day. I found an article in ASCO about taking exemestane 3 times a week is noninferior to daily dose. Your half dose every day sounds a lot better. I’ll try that. Thank you!

REPLY
Please sign in or register to post a reply.