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Replies to "Hi @mvanstem, I have the same as a result of PCNS Lymphoma. Balance, double vision, nystagmus..."
Brain & Nervous System | Last Active: 16 hours ago | Replies (78)
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Hi @mvanstem, I have the same as a result of PCNS Lymphoma. Balance, double vision, nystagmus and worst of all Oscillopsia. Have you tried any medications that have reduced the Oscillopsia? I am trilling a fourth drug at the moment but no luck.
Replies to "Hi @mvanstem, I have the same as a result of PCNS Lymphoma. Balance, double vision, nystagmus..."
My neuro opthalmogist has prescribed Gabapentin. It helps to a degree but it’s not a miracle drug
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Hello @pfother
Welcome to Mayo Connect. It looks like you have been treated for this condition for a while now. I would encourage you to post in the Parkinson's support group. In that support group, there are a few discussions which you might find helpful. Here are the links:
--Anyone have both Parkinsonism and Myasthenia Gravis
https://connect.mayoclinic.org/discussion/does-anyone-have-both-parkinsonism-and-myasthenia-gravis/
--Parkinson's or Parkinsonism
https://connect.mayoclinic.org/discussion/parkinsons-or-parkinsonism/
If you are comfortable sharing more, how long ago did these symptoms begin? Have treatments, other than medication, been tried? I'm thinking of vestibular therapy, etc.?