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New PET scan results confused and a little scared
Prostate Cancer | Last Active: Sep 10, 2025 | Replies (19)Comment receiving replies
So true ... It can be really nerve-wrecking scenario when "something" is seen but it is "inconclusive" or "probably nothing" 😵💫. One lingers above a deep void between hope and worry and feels stuck in no man's land. Somehow my husband and me are constantly in that gray area from the beginning. The best example is that one low-glow lymph node on a PSMA scan. Two world class experts said it is "nothing", but as the time passes my confidence in their "art of reading" is less and less 🥺 unfortunately ... Same with the last pathology report - it can really be with good margins, but one tiny spot is inconclusive, BUT "probably negative". As people in my old country would say: "Earth, please open under me " 😋
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What's in the scan could be "nothing", but there might also be "something" that's too small for the scan to detect yet.
After a cancer diagnosis, we lose that (false?) sense of security we felt before. Far more than the side-effects of ADT and ARSI for 4 years and two rounds of radiation therapy, I've found the big challenge with a stage-4 cancer diagnosis has been adjusting to a life where I have to admit to myself that the future is uncertain. To an extent, that's true for everyone, but I can't fool myself any more. For example, my PSA is undetectable (< 0.01), my CT contrast and bone scans came up clear, and all my blood work is good and healthy, but that doesn't mean my "routine" MRI on Tuesday won't find something all the other tests missed, and then suddenly my life will lurch sideways again.
We just have to accept that this is our new normal and get on with it. :-/