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DiscussionI saw the surgeon. More confused than ever.
Neuroendocrine Tumors (NETs) | Last Active: Sep 10 8:29am | Replies (32)Comment receiving replies
Replies to "Thanks for your reply. It has helped. What you say makes sense. I want to figure..."
I am glad that it has helped. It is very confusing. I got diagnosed in 8/22. I have done a lot of homework and learned a lot since then. Engaging and listening to folks on here really has helped too. People here have been there, can relate, and also can share their experiences. You are not alone. Great on the octreotide. I know that it has helped a lot of people with symptoms. The gallium pet scan that I get lights up like a christmas tree unfortunately. Hopefully yours is a dimly lit 8mm bulb that just needs to go bye bye. I am hoping for you. Please keep us posted and vent anytime you want. You have to let it out somewhere. For me, this is the best place for it.