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@carver1164 I can feel your frustration with your words. I know how that feels. I was also symptomatic and sick for a few years before officially getting diagnosed. Unfortunately, testing, diagnosing, and treating NETs is a process. It is also not a perfect process. Tests aren't perfect. Scans aren't perfect. Medical professionals aren't perfect. Mistakes do happen. It does take some trial and error. What is the harm of getting another ga-68 dotatate PET scan? What if it does find something this time? What if the octreotide clears up your symptoms? I personally want accurate information when determining the best course of treatment. I no longer care what I need to do or what test(s) that I need to endure to get it right. What are your thoughts on this?

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Replies to "@carver1164 I can feel your frustration with your words. I know how that feels. I was..."

Thanks for your reply. It has helped. What you say makes sense. I want to figure this out but this cancer process is a bit confusing. I'm all for taking the octreotide. I wanted to try it months ago. The PET scan apparently is a different to the Gamma PET. I think its for mapping out the si.
Its not just a gallbladder.lol
Thank you for your words.