← Return to What would you do if PSA stayed at 0.15 after prostatectomy?

Discussion
Comment receiving replies
Profile picture for tj1967 @tj1967

Hi Phil,
I’m starting to think the same way. Being aggressive feels like the only way to fight cancer. I’m hoping to be approved at Sloan Kettering. I’m curious, how was your experience with them? So far I’ve been thoroughly impressed with their follow-up and customer service. I already received the (ADT) relugolix 120 mg prescription in the mail, but I’m not starting it until the doctor reviews my PET scan and MRI. They just wanted me to be ready to begin after our next consultation. They’ve been fantastic so far, so I’m assuming the radiation treatments will be handled with the same level of care. Tim

Jump to this post


Replies to "Hi Phil, I’m starting to think the same way. Being aggressive feels like the only way..."

Hey Tim, I think you’re on the right track with Sloan - they’ve got decades of experience with this.
I had my treatment in Commack and had no complaints; the techs were awesome, caring and knowledgeable. I was totally impressed with their daily enthusiasm and supportive attitude. Maybe I just got lucky?
Not sure about proton therapy for salvage radiation. I know it’s used but still can’t see the point of it, when the whole idea is to literally carpet bomb the gland and nodes. But I am not a physicist so don’t go by me.
But they built it and now they have to pay for it so there’s always that.
Do a little homework (NIH, PCF, etc) to see how the two modalities compare.
I will, however, urge you to take the Orgovyx. A 6 month course ‘won’t kill ya’ as my referring urologist said and he was right. Most SE’s were mild and temporary; but its effects on your T (PCa food!) is dramatic.
The synergy of the radiation +ADT is powerful indeed. Neither alone is quite good enough but together they pack a terrific punch. Ask yourself this: How many more times do I want to wrestle with this thing? Twice was more than enough for me!!🤞🤞
Phil