← Return to NJH and bronchiectasis
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MAC & Bronchiectasis | Last Active: Sep 7 8:57am | Replies (29)
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Replies to "Hi - the following tests were done: CT chest and sinus, PFT, ECG, Echo was scheduled..."
I went to both Mayo (April) and NJH (May). Both were excellent. I have CLL, Bronchiectasis, CFTR-RD and immune deficiency. NJH (and Mayo) got me on a plan that is good. I plan to go there 3-4 times a year with the Oncologist and a Pulmonologist that specializes in CF and Bronchiectasis. I had the same exact tests and appointments that you outlined. Very thorough!
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Thank you so much again for the details of the tests you did at NJH. I like the approach that they can accept the local tests if they are recent. One test I don't like to do is bronchoscopy. I had my done late July 2024, I hope they can accept it. I just registered with NJH. I wonder since NJH uses My Chart, if I link NJH to my records, I think they might be able to view them. Is that what you mean when you say you forwarded yours? I am happy for you to get off 15 years of inhaler usage and 3 month of oxygen. What a life changer there. It made the trip so worthwhile.
I hope you continue to do well.
Take care!
Ling