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NJH and bronchiectasis

MAC & Bronchiectasis | Last Active: Sep 7 8:57am | Replies (29)

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Hi - the following tests were done: CT chest and sinus, PFT, ECG, Echo was scheduled - (I had echo, pharm. stress test and spect stress test in June, 2025, so they used the disc and paper copies of reports I brought with me), Sputum induction 2-3 different days, Airway clearance, bronchial provocation, laryngoscopy, percussion vest try out, ID consult, 6 minute walk test, sweat test, (already had genetic testing for C/F - I carry the c/f gene), ENT, modified barium swallow, bronchoscopy scheduled but I had one December, 2024 and Dr. Goldstein said he reviewed and they did a good job of testing, so did not have to redo, esophagram, Occupational therapy, Physical therapy, Speech therapy, lab draws, sweat test, videodysphagia study, lung expansion trial. I am sure tests were scheduled based on my medical history. I saw Dr. Goldstein on Monday, Wednesday and Friday, and Dr. Griffith, ID, one time.
I was so impressed with the education each person I saw gave me.
I did not choose my Drs. I had all medical records forwarded to NJH for review when requesting an appointment, and Patient Ambassador did excellent job of taking oral history also.

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Replies to "Hi - the following tests were done: CT chest and sinus, PFT, ECG, Echo was scheduled..."

Thank you so much again for the details of the tests you did at NJH. I like the approach that they can accept the local tests if they are recent. One test I don't like to do is bronchoscopy. I had my done late July 2024, I hope they can accept it. I just registered with NJH. I wonder since NJH uses My Chart, if I link NJH to my records, I think they might be able to view them. Is that what you mean when you say you forwarded yours? I am happy for you to get off 15 years of inhaler usage and 3 month of oxygen. What a life changer there. It made the trip so worthwhile.
I hope you continue to do well.
Take care!
Ling

I went to both Mayo (April) and NJH (May). Both were excellent. I have CLL, Bronchiectasis, CFTR-RD and immune deficiency. NJH (and Mayo) got me on a plan that is good. I plan to go there 3-4 times a year with the Oncologist and a Pulmonologist that specializes in CF and Bronchiectasis. I had the same exact tests and appointments that you outlined. Very thorough!