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Anyone living with Raynaud's?

Autoimmune Diseases | Last Active: Sep 5 10:57am | Replies (48)

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Touching a couple related topics…
It hurts to open a screw top or flip top such as a honey jar or toothpaste tube. I use a rubber square but flip tops are still difficult. Hand strength and coordination are okay. I cannot control my body temp and believe this contributes to the flares. The cold feels like it’s from the inside out.
There is little meat on my finger tips and they look like prunes. Rheum doc increased meds and this helped with purple finger tips and bruising on palms.
It’s over 100 degrees outside and I am wearing 3 layers of clothes and Uggs.
I’m having a pity party this week because I feel humiliated. I need a shot in my leg for IT Band inflammation and I limp to prevent falling. Leg swoIlen and numb before it hurts, and the pain doc cannot give me a shot until it hurts. I meet with a group of people on Saturday morning and an orthopedic surgeon gave me some free advice. “Use ice.” I thanked him, no need to elaborate. He meant well. I feel like an outlier. Raynauds + ice=trouble. I wear layers of clothes for a reason, not a fashion plate. Maybe I’m too sensitive, should be used to difficulty with uninformed docs.

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Replies to "Touching a couple related topics… It hurts to open a screw top or flip top such..."

I'm so sorry to hear how awful it is right now.