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DiscussionNext steps for metastatic low volume
Prostate Cancer | Last Active: Sep 5 1:37pm | Replies (10)Comment receiving replies
Replies to "It’s hard to believe they would have 20 sessions of radiation and not hit that bone..."
Hi Jeff, I've heard it can take 18-24 month post radiation to reach your nadir. I had SRT and 18 months of ADT (Orgovyx + Abiraterone). The SRT concluded in May of 2024 and the ADT concluded in June of 2025. My PSA was undetectable for 9-12 months. One month after cessation of ADT my PSA was 0.054. It climbed for a couple of weeks up to 0.065 on July 28. It has been declining since and was 0.04 last week. I'm thinking that the initial climb was due to the complete elimination of the ADT effects and that the subsequent declines are due to the continuing SRT effects. Have you ever heard of PSA declining all the way to undetectable for someone in my situation? As background I was diagnosed was diagnosed in August 2021, RP in September 2021, GS 8, stage Pt3b.
Hard to believe but still common. Some clinics and doctors aren't up to date with the latest doublet and triplet approaches to treating metastatic prostate cancer (or they do know, and just aren't convinced yet).
In 2021 (at a Regional Cancer Centre affiliated with a university and big urban teaching hospital), they radiated my spinal metastasis even before they did the prostate itself. I didn't know anything about this stuff at the time — things were happening fast — so I'm lucky they did.