Started out on Neurontin and was put on the generic, Gabapentin. I'm at 3600 mg a day for 22 years. Two of my siblings were put on Lyrica and one complained of swollen feet. Don't know what else they experienced.
I was diagnosed with small fiber neuropathy back in 2008. I started taking gabapentin in increasing doses not long after. At one point, after maybe 5 years I didn’t think it was working as well as it had at first so my neurologist suggested that I taper down the gabapentin and try Lyrica. I took one pill at bedtime and woke up a couple of hours later feeling like I wanted to jump out of my skin. I don’t know any other way to describe it, just a very anxious and agitated feeling. I decided that was the only pill I was going to take! I went back to gabapentin and have stayed on it since then. There have been other episodes where I didn’t feel that it was working as well so I gradually decrease the dosage and let my body get used to a lower dosage before I take increasing amounts.
I generally take 2400-3000mg per day, 600am, 600 noon, 600 dinner and 1200 bedtime. That’s the maximum dose I take.
I am so happy that gabapentin works for me, it has allowed me to walk whereas my feet, legs, hands and arms hurt so much without it that I couldn’t tolerate the sheets touching me at night.
Every person’s body is different and many have had success with lyrica. In my case it just didn’t work out.
I was diagnosed with small fiber neuropathy back in 2008. I started taking gabapentin in increasing doses not long after. At one point, after maybe 5 years I didn’t think it was working as well as it had at first so my neurologist suggested that I taper down the gabapentin and try Lyrica. I took one pill at bedtime and woke up a couple of hours later feeling like I wanted to jump out of my skin. I don’t know any other way to describe it, just a very anxious and agitated feeling. I decided that was the only pill I was going to take! I went back to gabapentin and have stayed on it since then. There have been other episodes where I didn’t feel that it was working as well so I gradually decrease the dosage and let my body get used to a lower dosage before I take increasing amounts.
I generally take 2400-3000mg per day, 600am, 600 noon, 600 dinner and 1200 bedtime. That’s the maximum dose I take.
I am so happy that gabapentin works for me, it has allowed me to walk whereas my feet, legs, hands and arms hurt so much without it that I couldn’t tolerate the sheets touching me at night.
Every person’s body is different and many have had success with lyrica. In my case it just didn’t work out.
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Hello @mayaduggal, You will notice that we merged your discussion the first discussion you started last year on the same topic so that you can reconnect with @dbchip, @solobeee1, @einer, @louise60 and others who have responded to your original discussion. If you click the link below it will take you to the beginning of the discussion so that you can read what has been shared.
-- Any feedback on Lyrica for PN would be appreciated: https://connect.mayoclinic.org/discussion/any-feedback-on-lyrica-for-pn-would-be-appreciated/
There is also another related discussion that you might want to scan through to read what other members have shared about Lyrica.
-- Lyrica: https://connect.mayoclinic.org/discussion/lyrica-3/
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2 ReactionsStarted out on Neurontin and was put on the generic, Gabapentin. I'm at 3600 mg a day for 22 years. Two of my siblings were put on Lyrica and one complained of swollen feet. Don't know what else they experienced.
My husband has been on it for one week. It has relieved his pain but neuropathy still present. No side effects
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1 ReactionI take Lyrica at night before bed for neuropathy in my feet. It works and I sleep so much better.
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1 ReactionI was diagnosed with small fiber neuropathy back in 2008. I started taking gabapentin in increasing doses not long after. At one point, after maybe 5 years I didn’t think it was working as well as it had at first so my neurologist suggested that I taper down the gabapentin and try Lyrica. I took one pill at bedtime and woke up a couple of hours later feeling like I wanted to jump out of my skin. I don’t know any other way to describe it, just a very anxious and agitated feeling. I decided that was the only pill I was going to take! I went back to gabapentin and have stayed on it since then. There have been other episodes where I didn’t feel that it was working as well so I gradually decrease the dosage and let my body get used to a lower dosage before I take increasing amounts.
I generally take 2400-3000mg per day, 600am, 600 noon, 600 dinner and 1200 bedtime. That’s the maximum dose I take.
I am so happy that gabapentin works for me, it has allowed me to walk whereas my feet, legs, hands and arms hurt so much without it that I couldn’t tolerate the sheets touching me at night.
Every person’s body is different and many have had success with lyrica. In my case it just didn’t work out.
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1 ReactionThank you for your input. Appreciate it.
I’ve been on Lyrica for years. It works very well for me!
Some people don’t like it , but i love it.
I got my life back ( mostly.)
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1 ReactionThank you for your reply. The lyrica seems to be doing its job controlling the pain. No side effects yet but he is increasing it every week.
It helps a lot better than gabapentin fo me.
Works GREAT for me aside from the ED. GabaPentin also caused ED, but didn't do squat for my diabetic neuropathy.