← Return to Staying Active in the Summer Heat: Tips for Managing Your Function with Chronic Pain and Symptoms

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Profile picture for Rachel, Volunteer Mentor @rwinney

Hello Jerry @zper1, it's nice to meet you. Welcome to Connect. These are great words of wisdom.

I couldn't agree more about having a positive attitude (mindset) and seeking distraction. I live with central sensitization syndrome and have felt the difference between what my brain recognizes and focuses on when alone or idle versus distracted, especially joyful or humorous distraction. You know that they say humor is the best medicine.

I'd also throw physical exercise in that mix, too. Do you have any other tips about managing nerve pain that you've learned from your experiences?

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Replies to "Hello Jerry @zper1, it's nice to meet you. Welcome to Connect. These are great words of..."

Greetings again @rwinney
I have plenty of tips for dealing with CRPS as well as nerve pain. My mother was afflicted with Causalgia, otherwise known now as CRPS (Type 2). This neurological disorder of CRPS produces long-lasting, intense pain characterized as burning, electrical jolt-like sensations, pins and needles, and more. I believe that it is an inheritable disease, but there is no definitive proof that it is a genetic component. My mother back in the late 1970s and early 80s, was a bi-annual regular at the Mayo Clinic in Rochester, MN. It was the Mayo Clinic that discovered that she had this unique, debilitating syndrome that caused such intense pain. The doctors there recommended a sympathectomy (or regional anesthesia, which she had done. It helped quite a bit to reduce her pain level, but the body adjusts accordingly to unfortunately return the pain after a few years.

CRPS is an affliction that is cloaked in an encompassing state because almost everyone currently involved in defining and treating the condition has little to no understanding of peripheral nerve anatomy. CRPS remains somewhat of a mystery to many medical practitioners.

As far as tips are concerned, there are definitely some worthwhile methods to look into via your pain management doctor. Please keep in mind that most insurances will not approve some methods without trying less invasive methods, such as medication for pain relief or nerve suppression. I have gone through the initial pain-relieving medications like Gabapentin (Neurontin), Pregabalin (Lyrica), and Gralise, which is a formulary drug that is specially made at small pharmacies. The aforementioned pain-relieving drugs weren't possible for me because I required the higher doses of 400 to 600 mg. I could not deal with the hallucinations, the increase in food intake, and the sleep deprivation. The lower doses of these drugs did not relieve any pain for me. I decided to use my brain and focus on the condition with mental prowess by incorporating exercise into my daily regimen. I also forced myself to work out with weights, walk briskly daily, and meditate. The activities helped with keeping me limber, as well as focusing my mind on the good, positive aspects of my life. My family and good, close friends became knowledgeable on the topic of CRPS because I shared with them the details of the condition. When you have chronic pain from any situation, people tend to talk more about their pain, or they are vocal when the pain is moderate to severe to those people around them. The people who listen to the aches and pains begin to ignore them more. For those afflicted, frustration comes into play, and they begin to view themselves as hypochondriacs.

I can post on a myriad of topics in the health field, but it would be good to allow me to post to this site. Let me know if there is a specific contact to inquire about regular postings.