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Anyone have any success with going to an LC clinic?
Post-COVID Recovery & COVID-19 | Last Active: Sep 6 12:48pm | Replies (76)Comment receiving replies
@theressa, at Mayo Clinic, there are several specialty clinics, like the long Covid clinic, EDS Clinic, Fibromyalgia Clinic, Pain Rehab Center and others, that evaluate, diagnose, and outline care plans for patients to follow at home. For long Covid, people experiencing sequelae of COVID-19 work with a team of physicians, nurses, subspecialists, and integrative medicine experts to assess, treat when necessary, and assist with improving overall functioning and quality of life.
I'm sorry to hear that your experience fell short of your expectations. Please be assured that Mayo Clinic would want you to feel comfortable and confident about your care and your time at Mayo. I’d encourage you to share your experience with the Office of Patient Experience
https://www.mayoclinic.org/about-mayo-clinic/patient-experience
Phone: 844-544-0036 (toll-free)
Email: opx@mayo.edu
Staff are available to discuss comments or concerns you may have regarding communication and coordination with local care. Your experience sounds like something Mayo Clinic would want to act upon.
Replies to "@theressa, at Mayo Clinic, there are several specialty clinics, like the long Covid clinic, EDS Clinic,..."
FYI - I just recently reached out to Mayo in Jacksonville, FL since it was at least in the same state as I am and got a response that Mayo has now closed this clinic. 🙁
In my research I have found some mentions of a possible LC clinic out of University of FL but have not reached out to them yet as it seems to be hit or miss as to whether these clinics do more than my local docs are doing, which is basically treating things as they come up...
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Thank you. I did follow up with patient exp about the colonoscopy and they said that the instructions which, are handed to patients, state that patients are to go to the hospital if they have a fever over 100.x. My temp was 104 and my spouse told me to take Tylenol and go back to bed. Mayo patient experience said that if I didn’t go to the hospital when I had a fever post the colonoscopy (it was awful prepping in a hotel, I will never do that again), it was my fault. It was my responsibility to read the Mayo instructions post a colonoscopy.
Patient experience was curt.
Thank goodness I didn’t listen to my spouse and I went to the hospital.
Please delete my comments about my experience at the lc clinic. Hopefully some people find it valuable.
I can’t delete my comments.