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DiscussionHas anyone gone off hormone therapy (ADT) after radiation?
Prostate Cancer | Last Active: Sep 26 12:17pm | Replies (100)Comment receiving replies
Replies to "In brief, I have seemingly been exposed to similar protocols. I had Prostatectomy, requisite node removal..."
It took about 18 months for my joint pain to subside after quitting ADT. My new normal is much better than when I was on ADT or the 18 months afterwards. You can do this.
After three years on ADT, I have been off for eleven months. There has been no improvement in the side effects (which are many and awful) My testosterone is now up to 100 (from < 4) and I am hopeful that the side effects will decrease as the testosterone improves. I am 74 years old, walk 3-5 miles per day and do intense yoga and weights three days a week. In addition to calcium with D3, I take Alendronate for my bones. Luckily, my PSA has remained “undetectable”.
@madpuppy74 I was on Lupron and Abiraterone for three years. I have been off for one year. I am still enjoying all the side effects, although my testosterone is slowly coming back.
One critical piece of information you didn’t include is what was your Gleason Score. That decides how long you should be on ADT. Another thing is what was your PSA at diagnosis?
To find out how quickly you are getting out of the hot flashes And other issues you need to have your testosterone checked regularly. Once it hits a 150-200 those problems will probably go away. How long it takes depends on how long you were on Lupron, And the older you are the longer it usually takes.
I’ve been on ADT for almost 9 years, Lupron for over 6 years. I go to the track across the street twice a day and walk a mile every day. I go to the gym three times a week and do weight training. That’s how you keep your muscles stable.
Yes, ADT can cause brain fog, I experience it every day, but I work around it by looking things up or using different words for what I want to say.
Another thing you haven’t mentioned is what was found in your biopsy. There are many different things that can make your cancer very aggressive like intraductal, cribriform, Seminal vesicle invasion or ECE/EPE. Were any of those found in your biopsy?
I have an embrlabs.com wave product (wave 2). I’ve used it for Over five years now. It’s like a refrigerator that looks like a watch and sits on the inside of your wrist. You could set up one of the buttons for their night mode . Hit the button twice and It Produces cold waves at measured times during the night and prevents hot flashes and night sweats. They used to bug me, before I got this device . When you start to feel a hot flash coming on, you hit another one of the buttons twice and it sends cold chills through your arms and it reduces the intensity, shortens the life and can stop the hot flashes if hit quickly enough. 60 day moneyback guarantee at embrLabs
https://embrlabs.com/