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Profile picture for hollygs @hollygs

Hi @rete. Thank you so much for your very thorough response.

I can certainly understand not wanting to start a new medication. There are many people here who have chosen that route. There are some who are happy with that decision, and some who regret it. You can do a targeted search here to find those posts.

When you say you "would just like to talk to someone about options" are you referring to medications other than Tymlos-->Prolia? If so, let us know as there are options.

I myself chose to start treating my osteoporosis with medication after I experienced an atraumatic L2 spinal fracture. I woke up with severe pain and went to the ER. CT also showed prior fractures of T12 and L1 from which I had not had any symptoms. I also concurrently had atraumatic bone marrow edema and fractures in my right foot and ankle. The outcome was that I was bedbound for months and my quality of life plummeted. Initially I was put on Fosamax, but luckily I was referred to a metabolic bone specialist who started me on Evenity. I did that for one year, then Tymlos for one year and just had my first Reclast infusion in May 2025. So far, so good! That being said, I can appreciate that this route might not align with what you want for yourself. I also appreciate that you seem to have an open mind and are interested in being proactive in the choices you make regarding your care.

Best wishes to you moving forward!

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Replies to "Hi @rete. Thank you so much for your very thorough response. I can certainly understand not..."

I found your post helpful. I have severe osteoporosis of my spine, and I don’t want to go through what you did with a fracture. However, I tend to have rare side effects from multiple medications. On top of that, I have autoimmune diseases and have had significant dental problems/work. So, the possibility of jaw necrosis with Prolia scares me just as much. I have limited resources outside my excellent Medicare and supplement plans, but I don’t think that they would pay for dental treatment if I had complications. I’m having trouble getting specific information about my options. What kind of specialist do I need? My rheumatologist prescribed the Prolia, but he is difficult to get in to see. Would a spinal specialist be better? Thank you.