← Return to Can anyone suggest a thorough book regarding Osteoporosis?

Discussion
Comment receiving replies
Profile picture for rete @rete

Hi hollgs
I’m new to this site so please bear with me.
I am 75, I fell from my bike in 2014 & damaged my shoulder which is now all screwed up,but fine to use.
In 2018 I was lazy & leant over to reach something & slipped on bathroom floor, I had a closed fracture on shaft/femur so nothing needed to be done. No other slips or falls, I’m quite slim only 56k in weight which apparently isn’t helpful for your bones. I walk, do exercises on you tube with an Osteoporosis trainer & generally all fine no aches & pains. I take all the vitamins etc we need & read & follow any information I can.

I did take Alendronic Acid weekly in 2019 for 4 years & then stopped had another scan in 2023. In 2019 AP Spine was T score 4.3. Z score -2.0
Femoral neck T score -3.0 Z score-1.2
Total hip T score -3.5. Z score-2.1

In 2023
Spine was T score 3.9. Z score 1.6
Femoral neck T score 2.7. Z score 0.7
Total hip T score 3.2. Z score 1.5

I finally after requesting to see someone after 6 years was seen by Dr Singh very nice guy but seemed determined to start me on Tymlos followed by Denosumab in 18 months.

I am planning on having a REMS test but would just like to talk to someone about options as I wasn’t offered an option, I think I’m going to carry on without any medication as it doesn’t always work and I am very careful when out and carry a walking pole.

Thank you for reading my message and best wishes to you for the future.

Jump to this post


Replies to "Hi hollgs I’m new to this site so please bear with me. I am 75, I..."

I'm a bit confused. What do you mean sometimes the osteo drugs don't work?

Hi @rete. Thank you so much for your very thorough response.

I can certainly understand not wanting to start a new medication. There are many people here who have chosen that route. There are some who are happy with that decision, and some who regret it. You can do a targeted search here to find those posts.

When you say you "would just like to talk to someone about options" are you referring to medications other than Tymlos-->Prolia? If so, let us know as there are options.

I myself chose to start treating my osteoporosis with medication after I experienced an atraumatic L2 spinal fracture. I woke up with severe pain and went to the ER. CT also showed prior fractures of T12 and L1 from which I had not had any symptoms. I also concurrently had atraumatic bone marrow edema and fractures in my right foot and ankle. The outcome was that I was bedbound for months and my quality of life plummeted. Initially I was put on Fosamax, but luckily I was referred to a metabolic bone specialist who started me on Evenity. I did that for one year, then Tymlos for one year and just had my first Reclast infusion in May 2025. So far, so good! That being said, I can appreciate that this route might not align with what you want for yourself. I also appreciate that you seem to have an open mind and are interested in being proactive in the choices you make regarding your care.

Best wishes to you moving forward!

@rete it took me a while to get an understanding of those DXA scan numbers. I mean how do those numbers relate to my risk of fracturing. I do not know if there is a chart somewhere that illustrates that? It's simple to say osteoporosis starts at -2.5 but how much does the risk increase when it goes down from there?
My take on this is that yeah -2.5 is the starting point for Osteoporosis but it's not so awful bad. But when you start moving down to say -3.0 or -3.5 you have moved into even more serious fracture risk. And above -4.0 is definitely red light flashing territory. Some people fracture at -2.0 but as your numbers go down the odds of fracture get worse. Once you are around -4 you are definitely at seriously high risk.
For the hips either a Total Hip or a Femoral Neck around -3 is definitely serious risk.

I'm just saying all this to perhaps give you more perspective on your numbers. I would suggest getting another DXA hopefully on the same machine with the same technician.
And I would suggest that medication wise considering Evenity over Tymlos and a bisphosphonate over Prolia. That is if you decide to do a med. Evenity simply builds more bone faster than Tymlos.
Best of luck to you!