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Turning down invitations

Post-COVID Recovery & COVID-19 | Last Active: Sep 2 7:10pm | Replies (32)

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Profile picture for vostie @vostie

See if you doctor will let you try Low Dose Naltrexone (LDN). I am 5 long years into Long COVID and, though things have improved, I was spending most of the day pacing my use of the minimal energy I had and lying down due to extreme fatigue. I started LDN in February and slowly titrated up to 4 mg per day. It has flushed most of the inflammation out of my body so my pain has gone from a 6-7 a day to a 2-3 out of 10. My skin started clearing up about three months into treatment and my energy got a boost about month two. Now after 8 months of treatment, I only have to lie down about 3 hours a day...and, though I still have to pace myself, I can walk 1/2 a mile a day, go out to coffee or lunch with friends...and wash my hair without using up all of my energy for the day.

Initially, the 1.5 mg dose made me super sleepy so I took it at night. After about two week, it gave me insomnia so I now take the LDN in the morning. It did give me quite trippy dreams that were quite vivid but not scarry. No other side effects for me.

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Replies to "See if you doctor will let you try Low Dose Naltrexone (LDN). I am 5 long..."

@vostie Its always good to hear LDN success stories. I’ve been on it for 10 years for ME/CFS, arthritis, fibromyalgia, and severe axonal Polyneuropathy. It’s the only thing I need for pain apart from an occasional Alieve when I have a bad flare. I’ve only tried going off twice and both times the pain returned. LDN helps inflammation and with mood too.
I’m convinced it’s a wonder drug for some of us.. I’m quite disabled from all my conditions (housebound and using a motorized chair to go out places), but honestly, I’m not suffering with horrible pain and believe LDN is why.