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I had an MRI in 2020 to look at my kidneys for kidney stones and they discovered a tumor on my pancreas which was then biopsyed and positive for a NET. It was discovered early and I was luckily a good candidate for a pancreatectomy which was donein early 2021. My surgeon removed all of my pancreas except the head and also my spleen due to shared blood vessels. I still received insulin and digestive enzymes from the head and there was no metastasis. I've been clear on every yearly CT scan including my recent one a couple of weeks ago. I was very lucky with the early diagnosis and surgery. I don't take life for granted anymore!

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Oh wow. So similar!!! I’ve just had the surgery this past April. Tumour, half pancreas and some lymph nodes taken. One lymph node had a small bit in it but no recommended treatment after. Tho trying the Creon now and not so sure I need it. Been fine since surgery but just had diarrhea that the Creon seems to solve and yet I don’t use it consistently. Thinking it was just a one off? Trying to see if I really need it. My first CT/follow up is Sept 29. I am so happy to hear your story 5 years out. They said they’d follow me for 5 years. Thank you so much for your post. So encouraging to read. Appreciate it!!