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Juvenile epilepsy

Epilepsy & Seizures | Last Active: Sep 7, 2025 | Replies (43)

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Just wondering how parents cope with their teens being diagnosed with this. My son had his first tonic clonic seizure at 15 and has had two more since then (9month span) they started him on lamtrogine after his first seizure, we thought it was a fluke because he was very sick the week before it happened so we weaned him off that 6 months later. He was off meds for 1 month and he had another seizure. So started on keppra. After 5 weeks of keppra he had another one, which we think was caused from not having enough of the dose in him.. any advice for this momma who overthinks, worries and has bad anxiety about all of this. I just worry for him!

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Replies to "Just wondering how parents cope with their teens being diagnosed with this. My son had his..."

Hi, @terin82 and welcome to Mayo Clinic Connect. I wanted to let you know I moved your post here to where others were discussing juvenile epilepsy so you can meet others such as @royanthony @jakedduck1 @sg325 and @santosha @kymill. Hoping they will have some insights for you on how parents cope with their teens being diagnosed with epilepsy.

What is your son's doctor recommending as a next step now that he had a seizure after 5 weeks of levetiracetam (Keppra)?

Hi Terin,

My son had his first seizure when he was 8. He had another shortly after that. He was put on Depakote. Everything was good so summer before 8th grade we decided to take him off of meds. First day of school had another. back on meds until he was 18. Decided once again to take him off thought maybe he had grown out of it at this point. Did an eeg after being off meds for 3 months and it showed seizure activity. Back on Depakote. Fast forward to today he is now 24 and doing well (knock on wood). I still worry about him every day, but a kind doctor once told me to just let him live his life. She never had any restrictions for him. He still sees his epileptologist once a year and gets blood work done to check liver and bone health because of the depakote. It was hard to face the reality that seizures were going to be a part of his life, but he has accepted it, takes his meds and lives his life to the fullest.