← Return to Have nonepileptic seizures/psychogenic nonepileptic seizures (PNES)?

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Profile picture for Dan Noyes @dannoyes

@santosha So my Mayo neurologist has me upload my seizures as a private YouTube upload and then I send him the video links in the portal. At one point he offered to walk through the videos with me to reveal specifically why they were FNDs versus epileptic, but I was very hesitant to know. Psychologically, seeing myself seize is so troubling for me. I hate even just catching a glimpse when I'm uploading the videos. He also said my seizures are very unusual, and he feels that after seeing me seize for over a year now, he can identify them immediately. Like you, I have both types of seizures, so distinguishing the seizure type is only important if they need to make medication changes. Fortunately, I'm on Vimpat and Gabapentin so the feeling is they are both relatively safe so since I primarily have FND seizures recently we're just going to assume the meds are keeping the epileptic seizures under control.

Send me a private message and I can share with you how I used Google's MedGemma to have it review the seizure video in consultation with my Mayo neurology team. I would never trust any other AI tool to provide trustworthy clinical insights at this time. There are obviously a ton of ways the other tools can help, but just not diagnostic perspectives.

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Replies to "@santosha So my Mayo neurologist has me upload my seizures as a private YouTube upload and..."

@dannoyes
Good Morning Dan!
Thank you so much for sharing all of that with me 🙏!
I will ask my husband to record every seizure I have from now on. Thank you for this valuable suggestion.
Chris