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Profile picture for foundryrat743 @foundryrat743

My own personal opinion is that FND is a label put on some patients, unfairly. My symptoms were very subtle, but enough to cause me problems. I was extremely lucky, in that I had, most likely, the best neurologist in the large Metropolitan City, with lots of suburbs, that I lived in! This neurologist went over me with a pin, checking for numbness patches, of which there were a few. She researched and put me through a CAT scan etc. This all occurred years ago, when I was a young man, in my 30’s. My balance was slightly off, and I had an ataxic gait. My voice got hoarse, after singing or speaking for a long time. Sometimes I felt a bit drowsy, and to compensate, I drank a lot of coffee, with caffeine. At times, my coordination was not the best. So, at first, the neurologist gave me the diagnosis of possible Multiple Sclerosis. After about 2 years, when my symptoms, like hand tremors, were getting worse, the neurologist admitted me to hospital, for about a week, for tests, etc. An MRI showed that something seemed to be pressing in on the Medulla, at the cerebelllar pontine angle. So, my neurologist referred me to the best Neurosurgeon in the city, who also happened to be the Chief of Neurosurgery, at a well respected University. At first, the neurosurgeon thought it could be a brain tumor. So, he and a younger neurosurgeon decided to plan on an operation. First, though, they decided to have me undergo an angiogram. Surprisingly, the angiogram revealed the artery pressing in on the medulla/brain stem. After deciding against operating, I was prescribed blood pressure medicines, to keep my blood pressure in check. I still have mild symptoms, and have adjusted to just dealing with the condition. I’m near 80 years old, and still doing ok, so I guess it was a good thing, that I didn’t undergo a brain operation. My current neurologist says that my most recent MRI does not show an artery pressing in on my brainstem. He suggested that I have another angiogram, but I am reluctant to go through that painful procedure, again! Hope my story helps you to feel a little better about having your condition, and dealing with it! My neurosurgeon stated that my particular condition is very rare to encounter!

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Replies to "My own personal opinion is that FND is a label put on some patients, unfairly. My..."

It's good that you had someone that helped you. Me on the other hand am getting more damage to different places in my brain. Like my A1 segments have disappeared in the past three years and some punctate white matter signal changes and some chronic microangiopathic ischemic changes.