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Carcinoid syndrome symptoms

Neuroendocrine Tumors (NETs) | Last Active: Sep 2 9:57am | Replies (7)

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I have this horrible itching also. My scalp is the worst. Top of my thighs above kneecaps, upper chest, neck, drives me crazy. I had a 3x3” area, upper chest that I had scratched so much it was starting to bleed. Was referred to a dermatologist, she tested & ruled out allergies so she biopsied chest & sent to Mayo for results. Results 4-6 wks later showed “nothing”. Antihistamines didn’t work so Dr prescribed a steroid cream that I use very sparingly & liquid drops for my scalp. Cold compresses also help to remove the heat. Skin is the most comfortable right after I have my Octreotide shot for at least a couple days; therefore I believe the itching is directly related to my GI Nets with Mets. I cannot tolerate the hot sun so I stay in the shade or indoors in AC. Hopefully my experience will help someone else.

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Replies to "I have this horrible itching also. My scalp is the worst. Top of my thighs above..."

i'm curious why antihistamines don't work, with whatever I have going on, they work, praying it's not carcinoid