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D.E.S. Daughter with an Autoimmune Disorder! Anyone else???
Autoimmune Diseases | Last Active: Jun 7 11:26pm | Replies (21)Comment receiving replies
@esgsf, the clinical team providing care regarding diethylstilbestrol (DES) exposure is Obstetrics and Gynecology at Mayo Clinic. You may be interested in this article for more information:
- Mayo Clinic Q and A: Women Should Talk to Doctor About Possible Health Risks if Exposed to DES in Utero https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-q-and-a-talk-to-doctor-about-possible-health-risks-if-exposed-to-des-in-utero/
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@colleenyoung
Thanks so much for this info. My daughter is now expecting an in her fourth month of pregnancy. She is a DES granddaughter. I was exposed in utero for over six months and we have flagged for her doctor that she’s a DES granddaughter. We both onset multiple auto immune diseases, including Sjogren’s. I also have rheumatoid arthritis and selective primary immunodeficiency(IgM) and she has hyper mobile Ehlers Danlos. We don’t know if it’s all related, but have been sharing all of our health info with the specialists and doctors that treat multigenerational complex cases.
If we can be helpful to any other family, we’re happy to do so.
I had six pregnancies, one live birth, and my mother died of breast cancer that they think was related to the DES when she was only 58 years old.
Partnering together and using great science, we’ve gotten a lot of help. But there are a few doctors that recall the DES impact and it’s so important to make it top of mind in every treatment.