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Still No Answers..Is it Just Me?

Autoimmune Diseases | Last Active: Sep 8 3:57pm | Replies (24)

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I really understand how you feel. I’ve been frustrated since getting sick after chemotherapy in 2005. I started having excruciating pain within a month of completing all the chemo. The first diagnosis was fibromyalgia. I was awarded disability, I could not return to work as an RN.
Anyway, it’s been a very frustrating 20 years. I was eventually diagnosed with chemotherapy induced peripheral neuropathy. The pain has persisted and some symptoms have progressed.
However, I don’t know if all of the symptoms are related to the CIPN. I have been sent by my family doctor to many specialists. I don’t know if they truly communicate with each other. And I do wonder sometimes if they’re truly trying to get to the route of some things.
I wish you the best. I hope you find some help. Hang in there!!

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Replies to "I really understand how you feel. I’ve been frustrated since getting sick after chemotherapy in 2005...."

Thank you so much for the hugs! It’s such a blessing to be able to talk about health issues, to people who really understand. I’ve heard and read that some of the issues we go through or illnesses we have, are called “invisible diseases”. Because it’s hard for others to understand things about us that they can’t see.
I can understand that to a degree. However, I struggled with my family not understanding, almost to the point of not believing just how sick I’ve been. My two sisters live in different states. So they never really saw the things I was going through. But at the same time, they never asked me questions about what was going on, what the doctors were saying, what kind of tests were being done and the results. So I just kept it to myself. My daughters were teenagers when everything started after chemo, so I felt they were too young to go into too much detail. I may be wrong, but I think most mothers don’t want to burden their children with unpleasant things like illness.
They are older now and understand things much better. My two daughters and I live nearby each other so they see the things that go on. They started helping me. Taking me to appointments and listening to what the doctors are saying. Now that’s a true blessing.
Thanks again for listening! I can be quite a talker! Chatty Kathy!!!