I forgot to explain that I originally planned to get a j-pouch. But after considering things I went with an end (permanent) ileostomy instead.
-- I had pancolitis with inflammation and ulcers all the way through including the sigmoid. So I figured there was at least a small risk of colon cancer in the pouch remnants.
-- More importantly, pouchitis is common and typically treated with an antibiotic, often Cipro. The CR surgeon didn't think that was such a big deal, until I explained I am effectively allergic to Cipro and Flagyl + would be concerned about an antibiotic triggering recurrent cdiff (less likely but still possible after removal of the colon)
-- But most important was a quality of life issue. The CR surgeon said I would have to be prepared to have 6 - 10 movements / day + without a sphincter muscle it would be very hard to control. I couldn't take going back to that. With an ileostomy I may empty the bag as much as 6 - 8 times a day. But it is at my convenience.
The surgeon offered to do a partial surgery that would leave me the option to change my mind and go with a j-pouch, but if I decided to stay with the ileostomy he would go back in with a second surgery to clean things up.
So a one shot end ileostomy it was.
Thank you for your time in replying to my post. My UC has been under control for years, but they bring it up after every colonoscopy. What complicates things is I had high dose rectal radiation in 2016, colon resection in2022 and then everything came back in 2024. I guess a lot will depend on the results of my MRI. I did tolerate the initial Folfox therapy fairly well, no major issues. It was when they put the Folfox together with radiation twice a day that I started having problems. If I hadn't brought up the fact that I felt the cdiff was back and I was in the bathroom 35 times in one day I think they would have just pushed on with the radiation. The second bout of cdiff was basically my fault, I had a sinus infection and asked for an antibiotic and they gave me one!!!
I am glad to hear you appear to be doing well and I appreciate your thoughts.