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DiscussionTalking Frankly about Living with Advanced Cancer
Cancer | Last Active: Oct 11 9:50am | Replies (562)Comment receiving replies
Replies to "I appreciate your response...it's so helpful to know that others experience similar feelings. And I have..."
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I don't mind sharing.
I have one of the rare sarcomas: leiomyosarcoma (LMS). No symptoms , no weight gain until one day, I couldn't keep anything down. It runs out I had a large retroperitoneal tumor causing a small intestine bowel blockage. Needless to say they excised the tumor. I was then listed as no evidence of disease ( NED) with a CT scan schedule every 180 days.
I had my baseline scan in December and in March a very aggressive lesion on my liver was detected. In the month to get a biopsy, get a port, and a electrocardiogram and other tests ;they did another scan and my lesion had doubled and now I had three lesions. I started chemo with the std for care of LMS in April and am now on my 6th and final cycle with doxorubicin/tribectedin regimen. Next week I go on maintenance chemo with just Tribectedin. In October they will do another scan to see if I am in "stable" condition. Every scan has shown an impressive reduction of the lesions. One is no longer detectable. I am going to ask the chemo/oncology board , after I am stable for two rounds of CT scans if resection of the liver is possible to remove the remnants of those lesions . Altho I have been fatigued by the chemo I still do not exhibit any symptoms from the cancer. I can tell my white counts are low because if I get scratched or cut or a hangnail they get infected and require antibiotics .