@oliver8112000
I was not diagnosed with CIDP. I was diagnosed with idiopathic small fiber neuropathy (started with burning and pins and needles in feet) and also congenital narrow spinal canal causing early spinal stenosis, degenerative disc disease, cervical myelopathy (spinal cord compression/flattening injury), and neurogenic claudication causing all sorts of symptoms. I had daily headaches, neck/shoulder pain, tinnitus, arm/hand weakness/numbness, bladder control issues, lower back/hip/buttocks/legs/feet pain/numbness/weakness, walking and balance issues, etc. I had 2 cervical spine surgeries, 1 lumbar spine surgery and carpal tunnel surgery on right hand 2022-2025. The decompression and fusion surgeries in my spine helped relieve some of my symptoms but have some permanent spinal cord and nerve root injuries due to delayed diagnosis and treatment.
I hope you get more answers to your questions on what your test results show, why they are doing or not doing certain tests, if tests are needed/risks, etc.
Did they do extensive bloodwork to check for neuropathy causes and to rule out things? Are you working with a hematologist/oncologist to do your bloodwork? Neurologists do certain bloodwork but a hematologist may be more thorough for potential causes to your symptoms.
Hello, I have what they call ‘late effects’ from the Chemotherapy and Total Body Radiation for my Bone Marrow Transplant for my AML Leukemia in 1981. My Breast Cancer DX in 2007 was a ‘late effect’. The list is long. My Neurologist said the Office will be calling me to set up appointment for the Spinal Tap. Then go from there. Sending prayers your way. 🙏🏻