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← Return to Neuropathy or CIPD???
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Neuropathy | Last Active: Sep 13 8:53am | Replies (24)
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Hello: I have had multiple EMGs, 4 on arm, 2 on leg. I also had a muscle biopsy (negative). Spinal tap(now referred to as Lumbar Puncture) - yes - that test revealed excess proteins in spinal fluid (abnormal and an indicator for neuropathy) A SPECIAL warning. If you have to get a lumbar puncture, demand to get it with radiology guidance. It is very awkward and distressing to have this procedure done without it. Keep pushing for the best care and don't be afraid to be a strong advocate for your health
Replies to "Hello: I have had multiple EMGs, 4 on arm, 2 on leg. I also had a..."
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Hello again, you have really been through so much. Funny, with the EMG tests, the last one they did I think it was on 8/14, they did not do my arms. I don’t think. I can’t remember if they did them in 2023. That is strange. I have had Spinal Tap before, (seizures). I am thinking after I get the results and depending what they say I am thinking of maybe contacting University of PA for an opinion. I have what they call ‘late effects’, many ailments from all the Total Body Radiation and Chemotherapy I had in 1981 to treat my AML Leukemia. Long list. I think this should have been addressed in 2023 when the EMG came back abnormal then. I also just had Left Carotid Artery Surgery 8 weeks ago tomorrow. It went from 50% blockage to over 75% I 8 weeks. I have never been so terrified of a surgery in my life. I know too well you have to be your own advocate. Thank you. 🙏🏻😇