← Return to Frustrated and confused about my meningioma
DiscussionFrustrated and confused about my meningioma
Brain Tumor | Last Active: Sep 20 1:40pm | Replies (26)Comment receiving replies
Replies to "Thank you, welcome to the group. Don't feel like you're getting blown off. Some doctors bedside..."
Ok so now I am more frustrated than ever. So I saw the neurosurgeon about my back and figured since I was there I would ask about the tumor. He said no not going to remove it until it was 10x the current size. I was like ok but I am symptomatic and he said the seizures are non epileptic seizure disorder. I had more MRIs and X-rays done per his request so they can put in a spinal cord nerve stimulation device. I followed up with my neurologist yesterday and he said I see you saw the surgeon for the tumor. My thought was no I saw him for other reasons but I kept it to myself. We talked about how the treatment for my migraines was not working and so he wanted to try one more shot before we try Botox. I asked about the seizures and he said that it’s not epilepsy but a stress response to the pain. I told him what the other doctor said about it being a non-epileptic seizure disorder and he said no there’s no such thing it’s just your bodies stress response to the pain from the migraines. I am so frustrated with this guy. Not only was he late taking me back to the appointment but then rushed me in and out of my appointment and it seemed like he didn’t really wanna listen to anything I had to say. And then to make matters worse my disability was denied