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← Return to Neuropathy or CIPD???
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Neuropathy | Last Active: Sep 13 8:53am | Replies (24)
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Wow. No they did not. They said next step Spinal Tap. I will definitely message both Doctors on Tuesday. I never heard of those tests. Were you diagnosed with CIPD but thought it was just Neuropathy? As I said in my original message, my Neuropathy started almost 3 plus years after Chemotherapy Treatment for BC. Never had Neuropathy before. Came out of nowhere. I also have no Reflexes. Thank you so much. 🙏🏻
Replies to "Wow. No they did not. They said next step Spinal Tap. I will definitely message both..."
Just to clarify, the IVIg, prednisone and Vygart-Hytrulo were treatments, not tests. Good luck
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@oliver8112000
I was not diagnosed with CIDP. I was diagnosed with idiopathic small fiber neuropathy (started with burning and pins and needles in feet) and also congenital narrow spinal canal causing early spinal stenosis, degenerative disc disease, cervical myelopathy (spinal cord compression/flattening injury), and neurogenic claudication causing all sorts of symptoms. I had daily headaches, neck/shoulder pain, tinnitus, arm/hand weakness/numbness, bladder control issues, lower back/hip/buttocks/legs/feet pain/numbness/weakness, walking and balance issues, etc. I had 2 cervical spine surgeries, 1 lumbar spine surgery and carpal tunnel surgery on right hand 2022-2025. The decompression and fusion surgeries in my spine helped relieve some of my symptoms but have some permanent spinal cord and nerve root injuries due to delayed diagnosis and treatment.
I hope you get more answers to your questions on what your test results show, why they are doing or not doing certain tests, if tests are needed/risks, etc.
Did they do extensive bloodwork to check for neuropathy causes and to rule out things? Are you working with a hematologist/oncologist to do your bloodwork? Neurologists do certain bloodwork but a hematologist may be more thorough for potential causes to your symptoms.